The ACR-16 trial is enrolling participants

A huge research study to join. Countdown for the cure. A huge breakthrough. Join it.
http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=616

CAG Repeate Article

This article teaches us about CAG Repeats and what they mean.

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=611

New Possible Cure

They can work with body temperture now. This is huge. Count down for the cure.

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=614

Life Line

I had another bad day. I had to use my life alert for the first time. Ear infections affect my balance. I feel three times today. I hurt every body part. I feel on my head. I did not get wounds though. I was lucky and did not severely hurt anything. They called Alice. Trevor was at work. Alice is my secondary. She came over to check. I had already hard time getting up. I have lots of bruises. I am getting sicker. My chorea is worse. I can’t sit still a lot now. Today I did not have my 360 view. The rest of my day has not been bad. I had one nice person who wanted me to write something for her MySpace. Her husband is my age. She is Trevor’s age. Both of us have early onset. I can’t find a lot of families like mine. It does not matter how sick I get. I will never stop blogging and give you guys hope. Can’t stop. I could not do that. You can always count on me every day. Our new condo will be 280 dollars a month! We were in shock when we found out the price. We have one person that gave us benefits. She thinks we should get more. She will help us get more money. She works for BC disability. Alice wants to take me to México. I have never saw the world. I am excited. Things are going great. I felt bad when she ditched us. I felt like she was my Mom. Forgiveness’ is something we should practice.

2009 World Congress on Huntington’s disease

Sept. 12-15, 2009Vancouver, British Columbia, Canada
Vancouver, Canada will be the host city for the 2009 World Congress on Huntington’s disease. Vancouver is one of the world’s premier meeting and convention destinations. Incredible mountains, sparkling ocean and a cosmopolitan flair make it perfect for work or play. The 2009 WCHD will be organized by a committee led by Dr. Michael R. Hayden and Dr. Blair R. Leavitt. Huntington’s disease (HD) researchers, clinicians, and members of the HD community from around the world will convene to participate in the meeting. The scientific program will feature presentations on recent advances in genetics and the disease mechanisms of HD, recent approaches to developing experimental treatments, and the latest findings from clinical trials.
The 2009 Congress will also include presentations by caregivers and international HD organizations, with sessions on social, historical and ethical perspectives of HD. We look forward to seeing you in 2009!

http://www.worldcongress-hd.net/html/2009/intro?wchdsid=fe569e61d552d9d386de628160290af6

Bad Day

Today was a bad day. I almost flooded the place. I was doing dishes and left the tap on. I finally heard it and got the water in time before any damage occurred. I got deflated by my Grandpa, my Mom’s Dad. He told not to raise my hopes on cures. He told me that my hopes are bunk. I was in tears. I don’t like feeling like I am going to die. I don’t like that. I was in tears and called my Dad at work. My Dad always knows the right words. I always call him when I am upset. He told me that all that matters, is that you believe it yourself. I know my Dad knows that we are going to get cured too. My Dad called me later and checked to make sure I was okay. I cheered up and walked Lucky. Went to gymnastics too. He just thought that maybe Grandpa was having a bad day. I went to the Gleaner’s. None of the toy people were there, so I went home. I got half of my blog up. I am excited. You will love this one. That cure that they found in 2007, will be here soon. They had a huge conference in Toronto. That is where they talked about it. It was supposed to come out 5 years ago. It cured the HD 100 percent. That is huge. Even thought the fight is huge, the fight for hope is always worth it. Gary is excited about it too. I always call him and give him hope. Don’t listen to people that are telling you there is no hope. There are no cures. That is what my Dad told me. It is true. Tonight we find out how much we are going to pay for our condo.