PGC-1 alpha gene modifies age of onset in HD

A good article on HD onset.

http://www.hdsa.org/research/news/pgc1alpha.html

One for Me, One for HD campaign

Thank you to the energetic and passionate Canadians who have shared their hopes and dreams for 2009 in our One for Me, One for HD campaign. And a tremendous thanks to the caring people who made a gift to our cause! We’re connecting with you to encourage you to get involved in our campaign and make your own special gift today!
Each and every goal is inspiring – and when I’m reading the goals that have been entered at www.oneforhd.ca, I imagine each person setting their thoughtful goals, and I am reminded of the strength and courage of our HD community. And each and every gift ignites hope and confidence – your gift is put into action in your community and across Canada.
Taken together, these goals embody our shared vision: a world free from Huntington’s. Only through personal action will we enrich our own lives and the lives of others. What a powerful force for change we can be!
Please take a moment right now to participate in our campaign and make a gift to the fight against HD. Your gift ensures we are funding the most promising research into a treatment or cure, and provides critical support to families confronting HD every single day.
Every dollar you give will be increased by 35% from one of our generous supporters. Now is the time to give to our cause and make your gift go even further!
Get inspired and inspire others today! Please, participate in our One for Me, One for HD campaign and give today!
Yours for a world free from HD,

Charity Print for HD

http://www.etsy.com/view_listing.php?listing_id=21877586

Moving

Our condo is so nice. We have had Trevor’s family down here they loved it. Trevor says he grieves for me everyday, for all of the things I can't do.They are down to see Molly. It is huge. Wheel chair accessible everything, even the patio. We meet a lot of neighbors and they are all really nice here. I know some of the older ones did not want young people moving. Our Landlord told them that young people need help. One of the Neighbors told us that. They took us on the dog path. It is a nice off leash walk. There all sorts of animals there. Lucky and Margret’s dog loved it. We have been going out for walks. I am happy. No more stairs ever. Those were horrible. This place is all space too. Less room to fall. We feel so blessed to have this. Trevor is starting his own Computer repair business. I have a huge walk in closet here too. I am going to do my first Relay For Life on July 7th. I will have a candle for little Kaiden. I am excited. I am going to be on my home support Nurse’s Shirley’s team. It took a while to get the net. They had a huge error in Creston. We all lost it yesterday. This is our year. This is your year. Live it. Learn form life. Life shows us the way. The chosen path. The way to go. Life shows us that. On Saturday Trevor and I go to Cranbrook. We are going to have dinner and a movie.

Molly's Dying

I got a sad and happy blogs today. I will start with the unhappy one. When I went to see Molly on last Sat, she was happy, healthy. On last Thursday she passed out. They took her to the hospital here. She has Gallstones and they ruptured her bladder. They are very painful for her. She is on tons of Morphine and is in a lot of pain. She was there for three days. She is now in palliative care in the nursing home. She is not eating. Not taking a tube. Every day we can Trevor and I are there. Alice came out of Mexico early to be there. Any day she could die. I don’t want to lose my Special buddy. We are all trying to prepare for it. I will forever remember the good times we had. We had tons of good times together. You can't ever prepare for it. I will enver forget my Molly.

In Depth Interview: Huntington's Disease

This is a great DR interveiw about HD.

http://www.wctv.tv/medicalminute/interviewheadlines/40388602.html