Wednesday, May 6, 2009
NeuroSearch demonstrates the potential of ACR16 as a novel treatment for Huntington’s disease
Posted by Heather Dugdale at 3:49 PM 0 comments
Tuesday, May 5, 2009
NDP
Posted by Heather Dugdale at 9:12 PM 0 comments
The Huntington's Disease Society of America Celebrates Mothers Day
http://hdsa.flowerpetal.com/FTD.COM
To make your flower purchase through Ftd.com go to www.ftd.com/ hdsa or call 1-800-SEND FTD and mention code #3015 when purchasing.This message sent byHuntington's Disease Society of America, 505 Eight Avenue, Suite 902, New York, NY 10018
Posted by Heather Dugdale at 9:08 PM 0 comments
Monday, May 4, 2009
Need some hope
Posted by Heather Dugdale at 7:56 PM 0 comments
Friday, May 1, 2009
HSC Reach for the Summit: Huntington Disease & Family Day Conferences
A nationwide project designed to bring the best of local and international HD expertise to a community near you! An innovative way to connect and learn
Join us as we beam some of the best HD researchers in the world to a community near you!
The Huntington Society of Canada, working in conjunction with the Faculty of Medicine at the University of Ottawa with the collaboration of the Centre for Mediated Teaching and Learning, part of the Teaching Support Service at the University of Ottawa, is taking a bold new approach to reaching families and professionals in their own communities. We're combining local programming with interactive videoconferencing that lets you ask questions and hear other audience members across Canada while you stay close to home.
“At the Family Day last year it was amazing to be in Toronto and be able to watch and listen to someone in Ottawa pose a question to a researcher in Vancouver. It was as if the whole country was brought together in one room. The presentations were very informative and the videoconferencing made it feel up close and personal.”
Posted by Heather Dugdale at 12:59 PM 0 comments
HDSA will recognize and celebrate May as Huntington’s Disease Awareness month
We are pleased to announce that HDSA will recognize and celebrate May as Huntington’s Disease Awareness month with the debut of a new TV and Print campaign featuring Olivia Wilde, who plays “13” on the hit show House, and her co-star, Peter Jacobson, (“Dr Taub”). They will appear in a 30-second PSA and Print Ad designed to build awareness of Huntington’s Disease (HD) and how the value of HDSA research and care programs goes beyond those affected by HD. The print ad appears below. To view the new commercial go to
mayawareness
In addition to participating in one of the many local events scheduled this month (www.hdsa.org/ events/), we encourage you to advocate on behalf of HR 678, the Huntington's Disease Parity Act of 2009. You can do this by visiting
At www.hdsa.org/ takeaction you can learn about other steps you may take to advocate for the passage of this key legislation.
We encourage you to utilize the fact that May is Huntington’s Awareness Month as a way to open up a dialogue with your friends and colleagues about Huntington’s Disease, and the HDSA programs of research, care and education. Explain to them that the discoveries made by our scientists are valuable to researchers working to understand and treat many other diseases. Invite them to attend an event, participate in one of our upcoming walks, or to visit our website,
to learn more about HD and how the 40 HDSA Chapters and Affiliates are providing much-needed support to families facing the daily challenges of Huntington’s Disease.
If you have any questions, or would like to request additional materials, please visit the HDSA website, or send us an email at hdsainfo@hdsa. org
Heather
Posted by Heather Dugdale at 12:45 PM 0 comments
