Wednesday, May 6, 2009

NeuroSearch demonstrates the potential of ACR16 as a novel treatment for Huntington’s disease

Today, NeuroSearch presents data on the mode of action and the preclinical pharmacology of ACR16, demonstrating the unique functional activity of the company’s novel drug candidate in development for Huntington’s disease.

Tuesday, May 5, 2009

NDP

I am going to start fundraising for cancer. Alice will be my first donor. Trevor's Uncle got prostate cancer. I can walk for him too.Tomorrow, I go to the dentist. I have a hard time remembering to brush my teeth, that is why it is important for me to get them clean. I get to go to the Gleaner’s tomorrow to get our MP’S number and address. Something amazing happened. We ran into a member of the NDP party outside on a walk. We talked to him. He gave us Michele’s number. They are running a Provincial election here. We get to get a hold of her tomorrow. Her office is in Creston. He gave an NDP party badge. They are the socialist party in Canada. The election time, people are willing to do anything to get elected. Trevor fixed his Mom’s computer. She took us out for Chinese food. On Friday we are going to see Star Trek. Everything works its way out. Times are good again. I believe all of this can get us back on disability. Believe. Never lose hope. Never lose sight of the future. It works out. Let everything slide. Hope will guide us. We are guided to hope. Hope defines us. Never lose it. Never get rid of your hope. It is all you need to survive.

The Huntington's Disease Society of America Celebrates Mothers Day

The Huntington's Disease Society of America Celebrates Mothers Day!Make your Mother's Day Flower purchase through the following links and HDSA will receive a donation for every order placed.FLOWERPETAL. COMAs a benefit of being a valued supporter of Huntington's Disease Society of America, there is no charge for flower delivery (a $10 savings). It’s a small token of appreciation for all you do to help.

http://hdsa.flowerpetal.com/FTD.COM
To make your flower purchase through Ftd.com go to www.ftd.com/ hdsa or call 1-800-SEND FTD and mention code #3015 when purchasing.This message sent byHuntington's Disease Society of America, 505 Eight Avenue, Suite 902, New York, NY 10018

Monday, May 4, 2009

Need some hope

My drooling is getting worse. I have been anxious and having mood swings lately too. We are getting screwed from the government, they took away my disability. Trevor got EI once; they are still not paying up. We are going to have to go to the MP, to get any action. If that does not work, we go to the NDP party. They are who I vote for in elections. They love to help the helpless and take on causes like ours. Trevor had a job interview at Mutli tech. It is a computer company that our friend runs. This all has to get better. It will go up. Lives can be harsh. Never lose sight of that light of hope, That is what drives us. That is what makes us tick.

Friday, May 1, 2009

HSC Reach for the Summit: Huntington Disease & Family Day Conferences

St. John’s ◍Moncton ◍Ottawa ◍Peterborough ◍London ◍Winnipeg ◍Saskatoon◍ Calgary ◍Edmonton ◍Vancouver ◍ Victoria
A nationwide project designed to bring the best of local and international HD expertise to a community near you! An innovative way to connect and learn
Join us as we beam some of the best HD researchers in the world to a community near you!
The Huntington Society of Canada, working in conjunction with the Faculty of Medicine at the University of Ottawa with the collaboration of the Centre for Mediated Teaching and Learning, part of the Teaching Support Service at the University of Ottawa, is taking a bold new approach to reaching families and professionals in their own communities. We're combining local programming with interactive videoconferencing that lets you ask questions and hear other audience members across Canada while you stay close to home.
“At the Family Day last year it was amazing to be in Toronto and be able to watch and listen to someone in Ottawa pose a question to a researcher in Vancouver. It was as if the whole country was brought together in one room. The presentations were very informative and the videoconferencing made it feel up close and personal.”

HDSA will recognize and celebrate May as Huntington’s Disease Awareness month

HDSA will recognize and celebrate May as Huntington’s Disease Awareness month
We are pleased to announce that HDSA will recognize and celebrate May as Huntington’s Disease Awareness month with the debut of a new TV and Print campaign featuring Olivia Wilde, who plays “13” on the hit show House, and her co-star, Peter Jacobson, (“Dr Taub”). They will appear in a 30-second PSA and Print Ad designed to build awareness of Huntington’s Disease (HD) and how the value of HDSA research and care programs goes beyond those affected by HD. The print ad appears below. To view the new commercial go to

mayawareness
In addition to participating in one of the many local events scheduled this month (www.hdsa.org/ events/), we encourage you to advocate on behalf of HR 678, the Huntington's Disease Parity Act of 2009. You can do this by visiting

hdsa to find your Representative and send a letter in two simple steps.

At www.hdsa.org/ takeaction you can learn about other steps you may take to advocate for the passage of this key legislation.
We encourage you to utilize the fact that May is Huntington’s Awareness Month as a way to open up a dialogue with your friends and colleagues about Huntington’s Disease, and the HDSA programs of research, care and education. Explain to them that the discoveries made by our scientists are valuable to researchers working to understand and treat many other diseases. Invite them to attend an event, participate in one of our upcoming walks, or to visit our website,

http://www.hdsa.org/

to learn more about HD and how the 40 HDSA Chapters and Affiliates are providing much-needed support to families facing the daily challenges of Huntington’s Disease.
If you have any questions, or would like to request additional materials, please visit the HDSA website, or send us an email at hdsainfo@hdsa. org
Heather


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