When I come back, I get an article about, my Conference. I will, blog about it, when I get back.
Tuesday, March 23, 2010
Monday, March 22, 2010
Fun Donations
We got a lot of fun, donation tickets, to have fun. We are going too Sea World and the zoo. I want, to swim with dolphins. They, have Panda Bears. I have never, seen, them. Their aren't, any Panda's where I live. I have always, wanted, to see Killer Whales and sea animals.
Servent of God
Everything I do, is for God. He will, make my speech better. I will, save people, in the heart, of the heart of the Lord.
Friday, March 19, 2010
Exitced
So exited to go speak, at the Conference. I, would, be one of the only active HD Speaker. I can't, wait, to see, all of my followers. I go to see Killer Whales and Panda Bears.
Health
I have a hunchback, again. I might see Mike, to see, if he can, straighten, my back again. My Sunshine, is back. I got really, depressed. When, I get down, my Dad says, wait it out. I am still healthy and extremely tippy. All, of my Church, catch me, when I fall, or get tippy and can't walk. I have, been leaning, to one side. Learn, to love yourself. You, are worth, saving. Never give up, hope, for survival.
Thursday, March 18, 2010
Uncle JC Killed Himself
It turns out, that Uncle JC, killed himself. Last year, he got sick, they could, never find out, what it was. Work, was his life. Then, he lost, his licence He sat, around, depressed all day. His Wife and Alice, wanted, him to come, to Mexico. They, told him, that he needs a pacemaker. It tuns out that, he had heart problems.They wanted, him out off his, anti- depressants. They, wanted, a clear system. It all, become, so much, harder, with out his meds. He had, no choice. His death, won't not, mean anything. It, will give me fuel, to heal hearts, more. He, makes me, want to save everyone. He, will make me, stronger with my Speech. I can save, more people, there for him.
Wednesday, March 17, 2010
Thanking those who helped me with getting me in and to my Convention
I want to thank Kim and Nick, for inviting me. Thank Trevor, for being my advocate and help dealing, with Kim and Nick. Thank you, Aunt Caroline and Alice, for gettting my VISA, for me. Thank, Trevor, for getting my hair done, before I go. Thank my Daddy f0r my share off the money, for thde trip and spending money.
Tuesday, March 16, 2010
Super Familly
Alice ran into, one of Mom's Nurses. She knew our, family. They met in Mexico. She knew my Grandpa Budd. She used to check his high, blood, pressure. He is my Mom's Step Father and he knew Grandma too. They were good friends. I got to learn about, my Mom and Dad , when I was a little girl. I had a perfect family. Both, of them amazing parents. My Mom, was the first to make, muffins for, Preschool. She could go to our Elementary Plays.
Monday, March 15, 2010
Got My Own Horse
Today, I went to get my horse. She is a pony, named Inga. She is beautiful and has black stripes, on her forehead. She is female, they are more sweet. She got, me a slow horse. Two, helpers, will help me keep balance on the horse. Trevor's Aunt Caroline, will volunteer , with the horses. She has worked, with Horses before. I am so excited, to have my own horse. She is so beautiful. I love her. I used to ride, my Uncle's horses, when I was healthy.
Saturday, March 13, 2010
Friday, March 12, 2010
Home Care
They do everything for me. they have started bathing me. It was, a fight for a month, until I realised, that I needed it. Also Terry, got us a private Nurse, Dora. She cooks and cleans. I accpet. I have HD, it will get worse. This is real HD living. We get sicker, our strength, keeps us fighting, until the end. Never give up, fighting. Together, we are strong. Fight, every day, hour and minute. Keep the sunshine, don't go, into, the hell. It is not, good, for your soul. It, must be purified. Follow, me into the light. You, will be safe again. Just see, the skies and clouds, and, nothing can, touch us.
Self Sooth
Everyone needs a Mental Health Advocate. They give, you, skills, to help your HD. I use, them all, the time. I learned a new one. Self sooth. Every time you have any type of feelings, you think of something, that sooths you. I use Trevor. This is so good. I can control, every feeling, that I have. It responds quickly.
Thursday, March 11, 2010
Trevor's Uncle JC
Trevor's Uncle JC, had heart, problems, for a year. He, was always dizzy and could not work or drive. 2 days ago, he had a heart attack, when they, were transferring him, to another hospital. He leaves in Wife and Two kids, with out their Daddy. I don't, know what, I would do without him He always, know, what to say, when I am hurting.
Princess Karli is dead
One of my HD, online friends, died today. She was Juvinile. She, was a fighter. She, would never give up easy and never, let HD take her Spirit. Karli, she was in my, JHD video. I am, friends, with her sister Erica. Her pain is gone. She is heaven and healthy. God, will look, after her. She had so much, sunshine and was always happy. A very good spirit and she coould make, you smile.
Wednesday, March 10, 2010
Creston Newspaper
I am going, to write a positive HD, article, in a Creston Newspaper. Every HD article, is just, so neg. I want to, get, to get the truth, about HD. It is not Hell, it is Heaven The truth, has to gets, to the media. We hardly, get any HD, articles, in Canada. They had a neg article, hare. It scared, all of my neighbors. They got to, see how ad it was. They, did not have HD. This Is the real HD. They, wanted, my story, from my website. Time, to hear, the truth, for the frst time. I want, to change minds and expose our HD. The real thing.
Tuesday, March 9, 2010
Perfect Weight and Meds
I am my perfect weight, 17 lbs . Trevor, makes, drinks, for me to maintain, my weight. My meds has me feeling. I get heatlhy, I felt, when I first got it. Then there is a bad side that
Is stage 1 again. Then it is so good, it feels, like I am healthy again. I am so exited, of this change. This is it, I get trippy and lean to a another, person. This comes at Church or, the Crockery. I lean on Trevor. Everyone, in my new Church. They, caught, me, when I fall or lean. Everyone, there, really, just, wants to, take care of me. No more Chorea, just HD. I love this.
Exicited to go to Atlantla
I was blown away, when the, faithandhope Society, asked me to Speak at their convention. Kim, who, runs this Society, found out, that she HD that she got suicidal. Someone, told her about, my blog. I saved, her life and gave hope again. That is, when, why wanted, me too Speak. They fund raised, for us and Alice, to come for free. Trevor and I have, no money or disability. They got us Airplane Tickets. Terry, is coming too. He, saved, some Air Miles and wanted to join us. Trevor, is in School, he can't come. He was my advocate and arranging, everything, for me. Kim, is taking,us a tour. I always , wanted, to see Sea Animals. They also have, Panda Bears. I love animals.
Monday, March 8, 2010
Friday, March 5, 2010
Working with God
It has been, 2 weeks,everyone s so empathic and really cares in there. At the Gleaner's one knew or wanted, to find out about HD. First time, I walked, in there, I felt, like home. They are all praying for me and Trevor. We switched Church's, because, they treat me so great. I was never excited about the Gleaner's as I am here. I love giving back to those poor kids and my Special Friends. At 11:30, I set with my Special Friends, to encourage, them to eat.At noon, I am am dessert girl. I was never shown, how to deal, with the people. I naturally gave them service, with a big smile. I also, told them to enjoy it. I am at the end of, the line.
Thursday, March 4, 2010
Wednesday, March 3, 2010
Six common barriers to personal happiness and fulfillment and how to overcome them
I struggling with depression and mood swings. I distract my self, with music and TV. It is art of HD. Here is an article, on what is making, you unhappy. This is my DBT skills that I learned.
http://www.webmd.com/balance/features/why-youre-not-happy?ecd=wnl_lbt_030310
Monday, March 1, 2010
No More Chorea
My meds, were up so much, that I got crazy Chorea. People wanted me to get a walker. I kept, telling, them I would get Chorea meds. Gary is on them and he looks healthy. I wanted, them before, I did my speach. I can, have it easier, when I do Relay for Life. Never forget, about Chorea meds. They worked, in my family. They can work for you.
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