I am moving

Can't Blog Wedsnesday

Horse riding takes me out.

Atlanta Photos

http://www.flickr.com/photos/47935485@N04/sets/72157623605257291/

May HDSA Events

http://www.hdsa.org/events/index.html?month=5&year=2010&state=-

Carnival

I, went to my first Carnival, on Friday. My whole family, loves Amusement Parks. We, used, to take, Mom, when she was sick. At Calaway Park, in Calgary, was our favorite Park. We used, to head up, with my Uncle Keith and my Aunt Karen. I used, to ride, their Pony's. They are, my favourite Aunt and Uncle. They, wanted, me to live, on their farm, but I had, to get tested. My loved, the Swan Ride and the Train, even, if she was sick. She, would, come, in her, wheelchair Mom and watched, us have fun. Then, one, thing broke, her and she could not come out. My, Mom, was watching us and someone, called in the EMTS, they thought, that She, was having a Stroke. It, was Chorea. Then, we never, go out, any more. It, took, one person, to, wreak my Mom and our family. If, I was older, I could, ofher help her out.I am, never, going to let, anything, get in my way. You, all, make a promise, with me. We are, strong, we are loved, we need, to have Faith, in us and God. He, wants, us to live our, life unashamed. We can do it together. Don't let, anyone hide you. Don't, be embbarrsed, walking around. You, waist, so much, life away. Live and you will, get to love life.

Accept HD

Denial, is an ugly was to live. You, have to face your fears and open up, your eyes.

Don't run and hid. That, darkness will, trap you and not, let you go. Start, living your life and love your life. You, have nothing too fear, if you accept HD. We have HD, it is, in our family. It, is there and it's not, going to go away. Live with it and love it. It, will free, you and make, you happier, without, the burden.

Going to Cranbrook

Going to see Clash of the Titans.

Trevor Has One Test, Then He Does His Practicome. He is a B Plus Student

Team 2 Cure HD tees off at benefit tourney April 30

http://www.hdsasandiego.org/aev-59.aspx

Fun Hourse Riding

This, was one of the best days, of my life. When I saw Inga, I gave, her some love and hugs. She nuzzled me. I think, she loves me. It, felt good to ride horses again.I had a left and right, person, on each side. My back is like a Hunchback, so I tried, extra hard, to maintaining, to be straight.

Trevor, is Writing a Paper

Inga

Tomorrow at 12:00, I get to ride Inga. Trevor's Aunt Caroline, is my Therapist.

Saving Zoo Animal Lives

I saved a Gorilla and Baby Panda's, from crazy kids. It was a Gorilla Show, the kids, were taping the glass, she, was so scared. She was remained, of her cage, the hands to scare her. This came natural, I told, the Gorilla, that I am going, to protect her. She was so sared. I went up and stood, in front, of Kids ,I kept them away. It was a Gorilla show. I waited, until the kids left. It was, the same, with the Panda Bear. I felt, like I did, when I saved, that Woman's life. It all felt natural. I saved, her from, choking to death. They left her there, for 10 min. They yelled for the Heinlicmc maneuver. I assessed, the situation. She, was choking on, big chips.She, was overweight. I learned, how to help, people, when you choked. I raised. her arms up and cleared her thort up.

Missionary Of God

I am now a Missionary of HD. I always, wanted to be a Missionary. I wanted, to help, kids, in Africa, when I was in my early teen age years. We, wanting, to save people, starting, in grade six I never stopped.

Doggie Field Trip

We, went to Canyan Park, with Princess and Lucky. They, love it out there. It, is one of our fav, hikes.

Fixed Wedding Pictures

Working With God

Today, was my first day back. Everyone, was happy , I went back as a Servant of God. Today, everyone, at Church, was exited I was back. Today, Trevor worked, with us. There is an HD Community inside my Church. I, thought I was, the only here. It feels good, to have, HD people here. I am no, longer alone.

Changed My Main Page

Trevor is finishing School

Trevor is an A student. He us doing finals, right now and getting amazing marks.He, has me to practice, his skills. Everyone, there, thinks, he has the right temperament. The Teachers, makes, it for your career. What, they say goes.He is a caring, patient man. I could, not wish, for a better Husband. He, is doing, this for me. He, never, wants to see, me in a home. Trevor, has 10 weeks, of Practicum. He is going, to work, for my Home Support.

Vitamin D, Will Protect You From Disease

I added a Altanta Convention Photos

Award on Main Page

National Canadian Award

Two, really, awesome awards. I have, always, wanted, to be known, for the HD Work, that I do on here. I always, wanted to, win a National award. I did to win, but they are, going to, talk about me at their Dinner Party.

Won One Of The Biggest HD Award

I was recognised me as a HD Community Leader, by Access DNA. They are in charge of rare disorder's, like HD. They, want relibale info, like my site and blog.

Get to Ride My Inga

I got myself, my favourite Pony. She is a Pinto. What are, the odds, of getting, my fav horse. She, is so beautiful. She, is perfect, for a little Midget, like me. She is slow and loving. She was my top, of my list, as soon, as I saw her, it was, instant love. They will, have to Therapeutic, helpers on, each side, to give, me balance. I get to ride her, on April 14.

Karli

We talked, about, her at my conference. They, showed, pics of her. We, thought, that, she had a great Mom. So, brave. We, all missed, her, there. We had a Tribute, to her.

Back from Atlanta

My first Airplane, was fun. We went to, Spokane and switched over to Salt Lake City. They, got us a swanky hotel The first thing, we did is we went to a High Fashion Mall. I got a lot of good pieces. People who known me, that I am obsessed, with fashion. If, I was healthy, I would, become a Fashion Designer. The next morning, we went, to the Hard Rock Cafe. Trevor, plays Guitar, we went there, for him. We got pictures of a Bon Jovi Guitar. Trevor, loves Bon Jovi. That night was, the night I spoke. They another HD person here. When, I first, saw him, I was, in tears. He, was so sick. He, was 37. His, name is Danial. He came, with whole, family. They, were, really great people. Kim and Nick, were, our friends, online. It, was, amazing to finally meet, them. Kim, is my Sister. We both, have red hair and we look, a lot a like. We, spent, the whole week, together. The speech, was on hour long. It, was a big hit. I changed, their lives. I, gave them, all hope, for the first, time. I told, them, about my life, so they, could here it, from a HD mouth. Taught, them about, living, with HD and how to deal, with it positive. Kim, took us too, a bird shop. We got to see, Toucan Sam and I got, too hold Doves. Alice and I, went to the Zoo. They had African Animals. They, had real habits,for them, then they had, a bit of Rain Forest, for the Monkeys. We were, there to see, the Panda Bears. I got watch one, for half an hour. We got to watch, him eat. He pealed his Bam Boo and ate, is shoots. On, the way out, I said, to a Elephant, Good Bye. He he turned around and waived, his trunk and flapped his ears at, Alice and I. Me and Alice had a good time.

Going Tomarrow

When I come back, I get an article about, my Conference. I will, blog about it, when I get back.

Heather's Positive Huntington's Disease Blog: Events- Ontario

Heather's Positive Huntington's Disease Blog: Events- Ontario

Events- Ontario

Heather's Positive Huntington's Disease Blog: Events- Nova Scotia, PEI, New Brunswick

Heather's Positive Huntington's Disease Blog: Events- Nova Scotia, PEI, New Brunswick

Events- Nova Scotia, PEI, New Brunswick

Heather's Positive Huntington's Disease Blog: HDSA Events

Heather's Positive Huntington's Disease Blog: HDSA Events

Blog is Messed Up

HDSA Events

Fun Donations

We got a lot of fun, donation tickets, to have fun. We are going too Sea World and the zoo. I want, to swim with dolphins. They, have Panda Bears. I have never, seen, them. Their aren't, any Panda's where I live. I have always, wanted, to see Killer Whales and sea animals.

Team 2 Cure HD tees off at benefit tourney April 30

http://www.hdsasandiego.org/aev-59.aspx

Servent of God

Everything I do, is for God. He will, make my speech better. I will, save people, in the heart, of the heart of the Lord.

Compassionate Allowances

http://www.ssa.gov/compassionateallowances/

Exitced

So exited to go speak, at the Conference. I, would, be one of the only active HD Speaker. I can't, wait, to see, all of my followers. I go to see Killer Whales and Panda Bears.

Health

I have a hunchback, again. I might see Mike, to see, if he can, straighten, my back again. My Sunshine, is back. I got really, depressed. When, I get down, my Dad says, wait it out. I am still healthy and extremely tippy. All, of my Church, catch me, when I fall, or get tippy and can't walk. I have, been leaning, to one side. Learn, to love yourself. You, are worth, saving. Never give up, hope, for survival.

Uncle JC Killed Himself

It turns out, that Uncle JC, killed himself. Last year, he got sick, they could, never find out, what it was. Work, was his life. Then, he lost, his licence He sat, around, depressed all day. His Wife and Alice, wanted, him to come, to Mexico. They, told him, that he needs a pacemaker. It tuns out that, he had heart problems.They wanted, him out off his, anti- depressants. They, wanted, a clear system. It all, become, so much, harder, with out his meds. He had, no choice. His death, won't not, mean anything. It, will give me fuel, to heal hearts, more. He, makes me, want to save everyone. He, will make me, stronger with my Speech. I can save, more people, there for him.

Happy St. Patty's Day

Suppot faithandhope Society, they are doing my Convention

http://www.cafepress.com/faith_and_hope#link-productCategory-110

Thanking those who helped me with getting me in and to my Convention

I want to thank Kim and Nick, for inviting me. Thank Trevor, for being my advocate and help dealing, with Kim and Nick. Thank you, Aunt Caroline and Alice, for gettting my VISA, for me. Thank, Trevor, for getting my hair done, before I go. Thank my Daddy f0r my share off the money, for thde trip and spending money.

Super Familly

Alice ran into, one of Mom's Nurses. She knew our, family. They met in Mexico. She knew my Grandpa Budd. She used to check his high, blood, pressure. He is my Mom's Step Father and he knew Grandma too. They were good friends. I got to learn about, my Mom and Dad , when I was a little girl. I had a perfect family. Both, of them amazing parents. My Mom, was the first to make, muffins for, Preschool. She could go to our Elementary Plays.

Got My Own Horse

Today, I went to get my horse. She is a pony, named Inga. She is beautiful and has black stripes, on her forehead. She is female, they are more sweet. She got, me a slow horse. Two, helpers, will help me keep balance on the horse. Trevor's Aunt Caroline, will volunteer , with the horses. She has worked, with Horses before. I am so excited, to have my own horse. She is so beautiful. I love her. I used to ride, my Uncle's horses, when I was healthy.

Watch Paralympics

Home Care

They do everything for me. they have started bathing me. It was, a fight for a month, until I realised, that I needed it. Also Terry, got us a private Nurse, Dora. She cooks and cleans. I accpet. I have HD, it will get worse. This is real HD living. We get sicker, our strength, keeps us fighting, until the end. Never give up, fighting. Together, we are strong. Fight, every day, hour and minute. Keep the sunshine, don't go, into, the hell. It is not, good, for your soul. It, must be purified. Follow, me into the light. You, will be safe again. Just see, the skies and clouds, and, nothing can, touch us.

Self Sooth

Everyone needs a Mental Health Advocate. They give, you, skills, to help your HD. I use, them all, the time. I learned a new one. Self sooth. Every time you have any type of feelings, you think of something, that sooths you. I use Trevor. This is so good. I can control, every feeling, that I have. It responds quickly.

Perfect Gifts for Hospital Visits

http://cms.carepages.com/CarePages/en/ArticlesTips/HelpfulTips/perfect-gifts-for-hospital-visits.html

Trevor's Uncle JC

Trevor's Uncle JC, had heart, problems, for a year. He, was always dizzy and could not work or drive. 2 days ago, he had a heart attack, when they, were transferring him, to another hospital. He leaves in Wife and Two kids, with out their Daddy. I don't, know what, I would do without him He always, know, what to say, when I am hurting.

Princess Karli is dead

One of my HD, online friends, died today. She was Juvinile. She, was a fighter. She, would never give up easy and never, let HD take her Spirit. Karli, she was in my, JHD video. I am, friends, with her sister Erica. Her pain is gone. She is heaven and healthy. God, will look, after her. She had so much, sunshine and was always happy. A very good spirit and she coould make, you smile.

29 more people needed and will pay up to $2000 toward travel. Please consider participation.

http://clinicaltrials.gov/ct2/show/NCT00724048?term=Huntingtons+and+acr16&rank=1

Creston Newspaper

I am going, to write a positive HD, article, in a Creston Newspaper. Every HD article, is just, so neg. I want to, get, to get the truth, about HD. It is not Hell, it is Heaven The truth, has to gets, to the media. We hardly, get any HD, articles, in Canada. They had a neg article, hare. It scared, all of my neighbors. They got to, see how ad it was. They, did not have HD. This Is the real HD. They, wanted, my story, from my website. Time, to hear, the truth, for the frst time. I want, to change minds and expose our HD. The real thing.

Team2Cure

HDSA Events

http://www.hdsa.org/events/index.html?month=4&year=2010

Perfect Weight and Meds

I am my perfect weight, 17 lbs . Trevor, makes, drinks, for me to maintain, my weight. My meds has me feeling. I get heatlhy, I felt, when I first got it. Then there is a bad side that

Is stage 1 again. Then it is so good, it feels, like I am healthy again. I am so exited, of this change. This is it, I get trippy and lean to a another, person. This comes at Church or, the Crockery. I lean on Trevor. Everyone, in my new Church. They, caught, me, when I fall or lean. Everyone, there, really, just, wants to, take care of me. No more Chorea, just HD. I love this.

Exicited to go to Atlantla

I was blown away, when the, faithandhope Society, asked me to Speak at their convention. Kim, who, runs this Society, found out, that she HD that she got suicidal. Someone, told her about, my blog. I saved, her life and gave hope again. That is, when, why wanted, me too Speak. They fund raised, for us and Alice, to come for free. Trevor and I have, no money or disability. They got us Airplane Tickets. Terry, is coming too. He, saved, some Air Miles and wanted to join us. Trevor, is in School, he can't come. He was my advocate and arranging, everything, for me. Kim, is taking,us a tour. I always , wanted, to see Sea Animals. They also have, Panda Bears. I love animals.

Team 2 cure

I have my passport!

I can go Speak at the faithandhope Society's convention!

Working with God

It has been, 2 weeks,everyone s so empathic and really cares in there. At the Gleaner's one knew or wanted, to find out about HD. First time, I walked, in there, I felt, like home. They are all praying for me and Trevor. We switched Church's, because, they treat me so great. I was never excited about the Gleaner's as I am here. I love giving back to those poor kids and my Special Friends. At 11:30, I set with my Special Friends, to encourage, them to eat.At noon, I am am dessert girl. I was never shown, how to deal, with the people. I naturally gave them service, with a big smile. I also, told them to enjoy it. I am at the end of, the line.

Can Meditation Reverse Memory Loss?

http://www.webmd.com/alzheimers/news/20100303/can-meditation-reverse-memory-loss?ecd=wnl_day_030410

Is Sleepiness Hurting You?Is Sleepiness Hurting You?

http://www.webmd.com/sleep-disorders/quiz-sleepiness-excessive?ecd=wnl_lbt_030310

Six common barriers to personal happiness and fulfillment and how to overcome them

I struggling with depression and mood swings. I distract my self, with music and TV. It is art of HD. Here is an article, on what is making, you unhappy. This is my DBT skills that I learned.

http://www.webmd.com/balance/features/why-youre-not-happy?ecd=wnl_lbt_030310

Protecting The Brain From A Deadly Genetic DiseaseProtecting The Brain From A Deadly Genetic Disease

http://www.medicalnewstoday.com/articles/180125.php

No More Chorea

My meds, were up so much, that I got crazy Chorea. People wanted me to get a walker. I kept, telling, them I would get Chorea meds. Gary is on them and he looks healthy. I wanted, them before, I did my speach. I can, have it easier, when I do Relay for Life. Never forget, about Chorea meds. They worked, in my family. They can work for you.

Jioning Relay for life this week

Trevor's parents are coming to my Speach.

Surprise Trip To Cranbrook

Working With God

Polly, got fired, by the Gleaner's, for helping, the sick ones. Terry, Trevor's Dad, is getting an Editor, to look in the Gleaner's. It is against, their policy. When, Polly, got kicked out. We at a Gleaner's Christmas Party, I was in tears, I loved Polly and I also, knew something, will change. She got fired, for defending us. Because Polly, loved,me, she looked all over, for a place, suited, for me. It was one off Trevor's old Church. We do, give, meals for poor kids and My SO and disabled kids. Sometimes, we need, the food bank. And have, been getting Christmas donations. That, money, made us have, an actual Christmas We got 500 dollars from the HD Society. It, hurts me, kids going, through, this. They don't deserve this. They deserve better. Our God, love, are saving these kids. Everyone is super nice. They have a nice Church there. There is one of Worker's, has a family, that has HD here They said, that they accept all, disabled people. My first day and I have people, praying for me. In there, they hug and a a pray. Church. I love working with god. I love my friends.

Atlanta

We got the tickets. We, don't know, who will, my companion , Alice or, Trevor's Aunt, would go. We got some paperwork, to get done. We, did, not get, my Passport yet. Kim, is, giving me a tour. We going, too see SEA Animals there. I always, wanted, to swim, with a dolphin. I am so, excited, to go too Atlanta and speak.

Meds Too High

We, went to see Dr. Walker. He did a blood, test and it showed, that my meds were, to high. Lower, doses, mean alot less, chroea and twitching.

Working with God.

Polly, got fired, by the Gleaner's, for helping, the sick ones. Terry, Trevor's Dad, is getting an Edition, to look in Gleaner's. It is against, their policy. When, Polly, got kicked out. We at a Gleaner's, I was in tears, I loved Polly and I also, knew something, will change. She got fired, for defending us. Because Polly, loved,me, she looked all over, for a place, suited, for me. It was one off Trevor's old Church. We do, give, meals for poor kids and My SO and disabled kids. Sometimes, we need, the food bank. And have, been getting Christmas donations. That, money, made us have, an actual Christmas We got 500 dollars from the HD Society. It, hurts me, kids going, through, this. They desirve this. They deserve better. Us, with Gods, love are saving, this kids. Every is super nice. They have a nice Church there. There is one of Worker's, has a family, that has HD here They said, that they accept all, disabled people. My first day and I have people, praying for me. In there, they hug and a a praying Church. I love working with god. I love my friends.

Got my Air Fare Tickets

I can, speak. to that Atlanta Conference. I get to go, on a tour, see the Sea Animals.

Monkey hybrid stem cells develop cellular features of Huntington's disease

Huge Stem Cell Break through. This is, a cure. One of, the many ones, this and HART. We chose, the HART trial, most of the Stem Cells, aren"t. for us. Only HART, gets JHD's in their Trails. They, found Stem Cells, that work, for us. This is hope. It is amazing for you Adults. This is one, of the ,cures. Celebrate, with me. This great news. This can cure, us It gets closer and closer, every time.

http://www.biomedcentral.com/1471-2121/11/12

Writing my Speach

Trying for me to get sponcered.

Donation Drive is amazing. We got so much mony, for us.

Confusion at the Diettion's

I have been, confused, can't understand , our appointments, that we go too. I keyed, into the part, when I start, losing, tons of weight. He told me last night. Trevor told me, there was nothing they could, do too calm, my tummy. I was at healthy, weight and if I, slide, they would, do he gain weight strategy, that I posted earlier.

Late Presidents Day Graphic

Cure is here in 2012, Huntexil®, Hart drug

When, I first started, I told, you that cures are here. Celebrate with me. We can live now.This med cures all of HD, symptoms. I have, waited my, whole, life. The Generations, will, stop. They have a short, JHD trial and it, would be realised. We are, first on the list, to get tested. I have been, studying, this for, my Brother Gary. I still, wish I was, the only, one, wt HD, that is why I am looking. At the Vancouver World Conference, all they did, is talk, about, this drug. I heard stories, about this making someone, who has HD, given a new life with this, med. They, wanted, the drug out, soon as possible.

http://www.neurosearch.com/Default.aspx?ID=16&M=News&PID=12&NewsID=15886

Saw my Diettion

I have hard time swallowing. I am eating Carbs, to give weight. Every twitch, took allot of energy. I drink, a lot of smothees and Diary Queen. We make small meals. and cutting, it small. I will tell, if it works.

Seeing my Diettion tomarrow

JHD Friend iin Hospace

This is why I started my donation drive. For the kids.

Horses

I get to ride Therapeutic Horse's in April. It is my Birthday present, from Dad.

Late Valentine - Photoshop Error

More Updates

I updated, my HD Info Page.

Going to see my OC and the Diettion

Tell you, everything, I know weigh 100lbs. This is stage two care.

I am entering stage 2./ Be Happy Like me

When I first had HD. I saw a hallucination, and stayed up crying. I told Trevor, that I knew, it was HD. It was. I started getting my mental symptoms, at 21. That, is when, I made, my Page. I had my DBT skills. I went, back, to Therapy, to learned, new HD skills. I have control of my Brain. That is, why I brought, them here. When I turned 23, me and 21 age, Brother, got HD, within a week, around Christmas. Trevor took it so bad, I calmed him down an Said Stem Cells. We want HART now. I warned my family, that I had it It was really, concerned, of my Dad. It, would, be divesting. Every stage, every thing I lose. I have no pain, with it. I asked, Home Support, to drees me. I ask and do not feel, like I am losing. we are going, to Phsyo, so Trevor, can us, Range of Motion. He is making sure, that, I can blog. My Dad Is getting me, Chorea Meds. My Chorea, so bad now. My blog is for you, help me to. Helping the needy ones. I figured out, how to go from NEG TO POS When, I was a teen, I got,sent to a self esteem class. They degraded, us and we got unlifted. When I went to DBT, my first day. They fought, my self esteem and self aware. When, you love your self and your accept your self . You can be positive, like me. Just keep, saying, I am worth it.

Trevor is doing, Range of Motion Excersize, for me to blog, for life.

Waiting for Passport

In 4 weeks, I will get my Passport. We are 11 mins from the US Border. We are close, to Spokane. Trevor's Parents, go to Sandpoint, finally, I can go there. I am Praying to go, to the Conference. I can a give allot of hope there. I have to thank Trevor's, whole family. They put, a lot, of time and effort in this. When, we went to my picture, with Trevor's, Aunt Carolyn she told him, I was like, Michel .J Fox. It took, me ten times, to get good pics. He wrote, a note, about it, so they could take one, if it was not perfect. He loved, me going, too speak at an HD Conference. I get to Travel Disability, we would get scooted around, and first on the Plane. I am taking Alice and Aunt Carolyn. She has kids, in, New Hampshire and she wants, us, too meet them.

Getting to my Dad's.

I m getting transferred , Trevor to Cranbrook, Alice to Radium and Calgary. My Dad will pick, me up, at Calgary and take me home.

My Dad is getting me a Chorea Med

My Brother Gary, is on one of them, no one can tell, he has HD.

More Updates

I updated My Care Giving Page.

Extending my HD Drive FEB 30

I gave flyer, to Paster Doug and expecting , Donations from Church. I want to give, them a week extra.

More Updates

I updated My family history.

Wrongly let go from the Gleaner's

I, loved Polly, the former Exc. there. She, retired and said the, next woman was mean and hard. Whenever is called, or work, they never, gave me anything, to do. Today, Trevor, went in there and fought my job. Ihey called me a liability. Terry, noticed it three, weeks go. The good thing is I can go to Crsentatics. It is where, my SO friends are at. They go on trips and are in plays. They do allot, of fun things, there.

More Updates

I updated My Story

JHD Drive a Sucess in my Community

No one new about JHD, here. I put a JHD, kid on the flyer, so they can see how, it is like. I wanted, them to be shocked, to donate. It helped being a very sick, HD, herself, giving out flyer's. My Dad gave out flyer's, to Central Alberta. Trevor, helped,me, with my flyer's. My Dad, was behind, me the whole time. He thought, this was a good issue. He wanted, me too find help here. I am, the only person, here who has here. Now, there is a 11 kid with it. He is so sick. I think, people are, in denial and do not want to see us.We have still, until the 20th. All, the money goes, to the Adults, none for us kids.

Coast Mental Health Courage to Come Back Award‏

This a major Award, from Canada. This Award comes from, Vancouver. It is a sick person, like me, who is proactive. We, take our disease, and do something about it. We change it and make it hopfull and not scary. No, matter, how sick, I get, I will, never fall and lead, back, to darkness. I will be on my death bead,l will be still bloggring. I can't handle, one person's pain. That's why I am Site Leader on WAREHD. Not only did I help HD, I also, did, Relay for Life. I can hardly walk, and I would never quit. Still going to walk. I am, the Canadian HD Spokesperson. They study, my story and my blog. They use for every function and support group, to cheer, people up. Then, there is me getting my JHD and my family Donations. Running, till the 20th. This is the first campaign, was geared for us.. I helped my American friends, get Stem Cells, Heath Care and also, the no Genetic discrimination, taken care of. Then, I am speaking about hope in Atlanta. Trevors Aunt, Nominated me. Ican't, look after myself, I think, I am getting into Stage 2. Donate for the kid's, who are dying, to young.

Going Home in 3 weeks

Trevor is going, to have, his first, Respite in 4 years. I kept telling, him to do it. Finely and he did it. I miss my family. We are thinking, to fly or take the bus. Either way, I will have a disability pass .Both will, help me and make it is easy, as it came be. I am excited. The future is so much fun. I get go home, Speak and Ride my horses. I going home, get to see my Grandpa and the horses on My Uncle's farm. They, are the ones, I ride when I was healthy. I will, still blog, every day, at my Dad's.

Foods to keep your heart, brain, and bones healthy

http://www.webmd.com/healthy-aging/nutrition-longevity-10/longevity-foods?ecd=wnl_hbn_011810

Gained 2lbs. I am 115lbs now.

Kimberly A. Gibson Spokesperson/ Founder

Information about, the conference, I am, going to speak at.

www.faithandhopesociety.org

March 27

Going to speak at a Confrence

I am going to The Faith and Hope Society. We have the same mission.We can't afford conferences, because, we don't have the money. They are trying, to sponsor me. I saved Kim's life. She was, suicidal. A friend,, told her about, my blog and I saved her life. That is why, she wants, me to speak. I m going to take Alice with me. I will have, to register, with Airport, to be disabled. They will, give me fun wheelchair. The event is in Atlanta Georgia. The date is March 27.

Surprise! The Only Online JHD Funrdrasier's

I have,been working, on this for a month. Their is no campaign, to help, these kids. Just me. What can't anyone see, us dying here? There is more, money, raised, to the Adults. I am hitting the Creston Community, they see me here, sick and fundraising, it gives them, the idea how it is like. I am waiting for 2 donation Cans. To My Church and the Gleaner;'s. They have a 100 volunteer's that love me there. They are sick on how, they treat us. My whole family's, we now think, got sick at twenty. We all have, no life, no future. All of the life, goes to the Adults, 30 and above. I think, most of, them have JHD denial. They don't want, to see us suffering. Donate for us. Save us please.

Our Marriage

I never, thought, I would get married, so did my family. I just left, from an abusive situation. My two brothers and Dad, came to help. A year later, I was a new Waitress at Nelly's in Calgary, AB,. He was, the dishwasher, going to SAIT, to become a Network Analyst. The first date, got the feeling, that, Trevor would never, treat me abusively. I told him, I had HD, do some Reaserch and ask, your family, if they could handle, it. A week, later, he said yes. When, we moved, in, my family, did a check. They did, it different days and said nothing about it It was so funny. My family, we are Computer Genius's. My Dad, upgraded, for the OIL patch, taught us age 5,what to do. My Dad, was impressed, how much, Trevor knew about Computers. Gary approved too and Scotto. With in the first month, that we, wanted, to, spend our life together. Our love came quickly. 6 months, later, he did a Treasure hunt for me. I could, not get, those clues. He, tried hard to stump, his Genius Wife. At, my wedding, August 4. I had an alter for my Mom. We never fight and get along and love each other. A lot at brides, think the get, the Fairy Tall Romance. We have that and my family was supper happy about it. He actually is becoming a Nurse to help me. This Christmas I could not, eat or drink and he helped. My Grandpa, told him, that he appreciate's everything I do.

More on Extrasynaptic Activity and Memantine in the HD Mice

http://www.hdsa.org/research/news/synapticactivity.html

2CARE - Coenzyme Q10 in Huntington Disease

We need people, to join studies, like my frailly. We need, to get treatments. Join up, be brave. We need tons, of people, doing, the right, thing.

http://www.hdsa.org/research/clinical-trials/ongoing-clinical-trials/coq10.html

NeuroSearch announces positive top-line results from Phase III Huntexil® study in Huntington's disease (the MermaiHD study)

http://www.neurosearch.com/Default.aspx?ID=3&M=News&PID=91&NewsID=15886

Suprise Soon

Hurt

I went, to a Society and it was, hopeless, focused on no hope. All about death and no future. I read one page, I felt scared. Just one page, is all, it takes. That, reminds, me of my Mission. I wanted to create, something, people, could let go, of their feelings. I wanted, to make, something, that, you can, get hope from. For the, first time, you heard, about the cures and treatments. Everyone believes, in articles, that we don't have any Treatments or cures. I wrote, the first, ever positive article. HD Advocacy Center, saw something in me and want, to show, us, that, we need do not need. I got my Every Day Hero Award. It is because, I tried, to change, things and make it a happy, place to be. I made, sure, no one, well, hurt, again.

Psychically Able, to Ride Horces

I am psychically able, to ride Therapeutic Horses. I start, in April. I am so excited. I have been wanting this, for a while. It is my Birthday, present, from my Dad.

I gained 2 pounds!!

I now weigh. I gained two pounds, in 2 weeks. I added 2 boost a day, worked out harder.

Working on a surprise

We can cure Litle Jake

Jake is sick

Our little stray cat, that we looked, after got Mange and ticks. He is contagious. We can't afford vet bills. We still, feed him outside.

HD Walk - SUNDAY MAY 16, 2010

http://www.hdwalk.org/

Fixed Back and Neck

It took two days of being a hunchback, I got my back and neck, fixxed it in, Physio. He worked on my neck and back. He had, me relax and get rid, of my Chorea. He taught me and Trevor a fun dance episode, where he keeps his posture strait, and he holds my hands, until he feels me to relax. We have crazy SO, party, to go tonight. We all are crazy.

Worked in Psyhio, to tired, to blog today

Continues on from Can't Stand

I stand on my tiptoes. Usually, I stand next to Trevor.

Creatine Safety, Tolerability, & Efficacy in Huntington's Disease (CREST-E

They desperately need people.

http://clinicaltrials.gov/ct2/show/NCT00712426?term=huntington%27s+disease+creatine&rank=2

Curved Back and Neck

Yesterday, my Back and Neck, got curved, at the Grociery Store. My arms made me look, like a Monkey. This is the hardest HD symptom,to deal with. This, is one of the things, that scare me. If, there, was no Trevor, I could not live, without him. He is learning tips, about me, apply, as a Care Aide. He got info about how, to my HD symptoms. He is asking his teachers, ways to help, me. Trevor is going to see the my old Pysho Therapist , Micheal. Trevor is going to use Range of Motion exercise. You turn your, side by in your neck and back, side to side. My neck and back hurts. A lot of Special, have a curved backs. They never lower down, and these Mentally
Challenged, they take it no problem. A lot, of them, have curve , backs too. I am, look to my Friends, to live happy and deal with all things coming. I think, I look, Like a Large Ape, it is funny! Always laugh, your head of! I am doing all a lot of Reality Acceptance. I am saying, this, is real HD. I am going to get sicker, I can make myself happy again. Accepting Reality is letting yourself, saying HD is real. It is going to get worse. Accept it and get back, to happy. Don't deny, Accept.

Blueberry Juice May Boost Memory

http://www.webmd.com/alzheimers/news/20100121/blueberry-juice-may-boost-memory?ecd=wnl_lbt_012710

Hart and JHD

Me an Gary were supposed to do Creatine. That is until Hart came around. I would rather get cured, then test a supplement. The Hart med can cure cognitive, behavioral and the pyhiscal part.It is healthier than the placbol. It is in Stage lll. That means they all get the med. When I found out it moved to Canada. I was Sceaming like crazy. I fallowed this, med for 2 and half years. The it was 20 mins away, for my Dad. I told him to stop Creatine. I called My Dad. All, I told him, is that it is a cure. My Dad, contacted, the Edmonton HD Lab. They said right now, they we testing 30 years old and older. They said, that might have JHD's, in there, after the Adults. She said, that the test is short. It is a year and half. Gary and I are first on the on the list. It might be one of the few, studies we can get in.

More Updates

Updated HD information page.

Today I found out 1 boost is 1 meal. I am drinking 2 too help gain weight

US HD February Events

http://www.hdsa.org/events/index.html?month=2&year=2010

I am advocating for the young ones. With funds, we could change this.

I am advocating for the young ones. There is little Research for JHD, kids. There is little money, to help us. With your help, we will get more money, for Juvenile Huntington’s Disease. The young ones just, can’t die and pass, on, without action. I have a Juvenile Huntington’s Disease family. All of the Clinical Trials are for those 30 years old and older. With funds, we could change this. No more kids don’t have to die. For, the next two weeks, you can search and I get 0.02 cents every search. This will last two weeks. In my main page, Search there. That little boy, made this come out earlier.

Found other HD kid in my town

In my, small town. There is no other HD people. Until today. One of Nurse's Twilyla had a Son that was friends, with a kid that could be JHD. Know, they diagnosed, the poor kid. He is 11 and is badly sick. My heart bleeds, for him and his family. I told my, Nurse, to tell, him about WEAREHD.org. I want him to find, the support, he needs. I am alone here, too. Everyone thinks I have MS. They have no idea, what it is. We don't have, to be alone, anymore. This is one of the reason's I am making, the huge surprise for.

Discovery Of Compounds That Help Protect Nerve Cells

This is a huge breakthrough. A new cure possibly. I was, right, we will get cured. It is coming. It is here. Now, the generations, can stop. No one, has to die anymore.

http://www.medicalnewstoday.com/articles/176601.php

The Right Not to Know: PGD for Huntington's

http://hddrugworks.org/index.php?option=com_content&task=view&id=275&Itemid=

Learning to Treat Depression

http://www.webmd.com/learning-treat-depression/default.htm?sponsorid=cymbalta&ecd=wnl_hbn_012510&em=aV9hbV9taXNzX3dvcmxkQHlhaG9vLmNvbQ==

CARLSBAD: Marathon runners go the distance For HD

http://www.nctimes.com/news/local/carlsbad/article_233e60b5-14b9-591c-b7f9-68f9804dc13d.html

I am busy making, you all something fun, 2 weeks from now

Another One Dies of Cancer

My Grandpa Budd, who had his Wife, die of Cancer, had his Brother die of Cancer, around Christmas. Even if I can't walk, Iwill walk like there is no tomorrow. I will still do the Relay for Life. It is my duty, t help out, both causes.

Olympic Torch

The cerimony is at 1:00. It is at the rec center. Then they run with it, down from, our place.

HD Psychical Update

My new meds, have everything under control. I can use my skills easier for. When they come up. I notice, key in, I tell myself, what is wrong, with, that behavior. I have problems speaking. Sometimes, people don't understand me. It gets worse,when I am tired. I have been having uncomfortable Chorea at night. It is intense pain. Now, it is going all, over my body. Even, as I blog, my hands are so painfull. It makes me, wanna, freak out or kick. It is, one of, the worst symptoms, I had. I walk, to relieve it. I can't dress myself, anymore. I can still, bathe, by myself. Some days I am healthy. Today, healthy, I have Chorea in my hands. It makes, me do double spelling. I will, never, never stop blogging. Everyday, come here, for your daily hope. I don't want you to get into the darkness again. There is no need, to go into he darkness. Come, up, to me.

Dr. Walker Visit/ Lost Weight

I am now on Haloperidol. I pushed myself, for putting the new med in there. DR. Trew , had a vision. I am on Zyprexa. This antipsychotic Haloperidol are in the same family. I get my moods and my Irrational Episodes . I am no longer depressed any more. I got some sad news. I now weigh 113lbs. I went down to healthy,to half my size. I have been eating bites of food. Then, I have an upset tummy and can't eat more. I started taking boost, everyday, but it still did nothing. Dr Walker referred to a Deition, to help me gain weight. Home support, makes my meals. They, are, tying to help me gain weight. We have to live, with, what we got. This, is the real HD. We need to know it. To fight it. We need a reason, to fight. A reason, to never give up hope. Keep fighting with me. We have strenght together. Together, we can get strong.

TD's For The Cure. We got 14 TDS, that is $14,000 for us!

Internet down

I am back, at the Library. I am taking Thursday off, for Gymnastics's. The Library, is not open Mondays. That is, when I get, the Internet back.

Touchdown for the Cure on in an hour

We watched the Christmas day Touch down for the Cure. Every point is 1000 for the HD Society. At Christmas, they got only 12. This is a playoff game. they will be extra good, to gain NFL status. I expect lost of TD's this time around.

Added a New Poem

I added a new poem called "Keep Fighting"

Princess is better today

Added New Photos

Princess was better today

Princess was full of energy today.

Olympic Torch

The Olympic Torch is coming here next week. They are having a party here. I am just waiting, for word on when it is.

Day 2 of new Research Page

The new Research page is up and running now.

Huntington Society of Canada’s Horizon newsletter

The winter newsletter from my Canadian HD Society. There are a lot of breakthroughs coming, for the New Year.

http://www.huntingtonsociety.ca/english/uploads/Horizon_130.pdf

Pnincess has Cancer

Princess, is one of my babies. She is Trevor's parent's baby. I love her. She went and got her shots. They found out that, her Lympth Nodes were swollen. They think, she has Cancer. They took, a blood test, too see if she has Cancer. I am going to be her Care Giver. She comes first.

More Updates

I updated my research page.

Suggestions to Help Children Cope

http://www.huntingtonsociety.ca/english/uploads/Suggestions_to_Help_Children_Cope.pdf

Elixir Announces First Sirtuin Inhibitor Clinical Trial

http://www.earthtimes.org/articles/show/elixir-announces-first-sirtuin-inhibitor-clinical-trial,1110321.shtml

Amaryllis Campaign

Give yourself, another pat on the back. We helped my Canadian Society sell, all of the Amaryllis Lily's, his Christmas. This is one of the first, times, this has happened. Thanks, everyone, that helped, make HD Research happen, in my HD Society.

Meds

I love having a clear head. Sometimes, I did not have the energy to, use my WIIFIT. Since, my meds are lower. I am very lively. Lot's of energy. No brain fog. My head is clear. A lot of energy. I used to not make it to the, Gleaner's, sometimes, I just could not get out of bed. No problem, doing it now. I have been suffering, mentally, when they got changed. I got, this, change and I ended up, with severe anger and severe irrational feelings. I will always have, the anger, controlled. I am a calm, easy going person. I never get angry at all. I cue in and it leaves, me time to calm down. Be mindful, of everything. It is gives, you time to deal, with, the emotions. Mindfulness, is cuing in and recognizing, feelings. I am losing control of irrational feelings. I have a lot of episodes, since I got my meds, changed. It is harder, to catch impulsive emotions. My HD Dr. Trew, wants, to put me on a anti - psychotic, for it. We want info about, this drug, before, I take. I get allegeric, reactions, to meds. We got a appointment with Dr. Walker, to review my meds. I have to, fight anger, more now. I am also, suffering, from depression. My Dad, told me, it comes and goes. Mom, used to be, like that. I listen, to happy music. It has got me, through, everything, including, my Mom's death. My Dad, does, not want me on extra meds. My Mom, had some anti- depressants, she would, sleep, all of the time. Come, fight, with me. We need, to survive. Survive, or die. What, would you rather do? I rather fight, to the death. I will, take on and show it, that it does, not own me. Make a promise, with me. To fight, with me. We, will, ever, give in. We will never give up. Join me, Fight with me. We are all strong. Together, we are united. Together, we are strong.

Unsweetend COLA

The sad state of medicare. I think this is crap, for you, US friends. I got Obama emails from the White House. They, wanted it based, on my country Canada. We have amazing health care. Everything is free and looked after. We don't have, to pay for hospitals. the only thing, is we have, long waits, for surgeries. They started, tearing apart and lying about my country. I got that in here. I thought, it could have worked, like Stem Cells. I was told to send this, to every one I know.

http://www.snopes.com/politics/socialsecurity/cola.asp

2010 BMW Sweepstakes

1st place = BMW

2nd Place = 5000

3RD place = 2500

4rd place = 750

5th place = 500

Get tickets at :

https://www.hdsa.org/national-sweepstakes/bmwsweeps/2010-bmw-sweepstakes.html

Dance for a Cure - MA Chapter

Team Hope: is the nation's largest team-based walking program

Join and help fundraise, for HD.

http://www.hdsa.org/team-hope.html

Sold out YK HD Society Gifts

We sold out the YK presants, in short order. Everyone, give yourself a pat on the back.

Studies of phosphorylation on the amino terminus of the huntingtin protein suggest a new direction for treatment

http://www.hdsa.org/research/news/phosphorylation.html

Synaptic activity, aggregation, and memantine

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=651

Going to Emerg to get a Catheter

I got it quicky and did not need a catheter. I do have a bladder infection now.

I am giving an HD Presentation

I am going to teach, Trevor's Nursing School, he stages of disease's and HD.

The President's Plan

The White House's Health Care plan

http://www.whitehouse.gov/issues/health-care

New Year's Address

This was the year of great discoveries. Great hope. Every year, it just gets better. One year, after year, gets us closer, to a cure. We can get there. We can get the generations to stop. Every year, we get closer, to that reality. Dreams will come true. They are reachable.Celebrate, with hopeful ears.

Christmas Fun

Two of my cousin's were layed off this Christmas, like us, last year. My one cousin Bradley, told me some neat SO, things for us to do. We just need, the funding. My cousin Brian is marrying his sweet Fiance. They, have two babies. When I go home, there are 11, babies. I get vacuously babies. Trevor and I take, them sledding, every Christmas. The roads, were so bad, that we divided, our route and got a hotel. My Dad, go me more WIIFIT, workouts. They are fun. This year, my Dad's oil company, Enanca. They closed out the Central Alberta and took it to Texas, where there is lots of oil. All, of my Dad's workers, were in limbo. They worked, together for 25 years. They all had to quit. My Dad, went too School, in Calgary. He learned how too build Oil and gas plants. He started, this Christmas, the new company. Scotto, did not have, to work, this year. He came down to visit. SO, is starting up and Trevor is going to school, on the 4th. I had a fum time, with my Dad. I am going back, to Uncle Keith's, so I can ride some horses.