Fixed Back and Neck

It took two days of being a hunchback, I got my back and neck, fixxed it in, Physio. He worked on my neck and back. He had, me relax and get rid, of my Chorea. He taught me and Trevor a fun dance episode, where he keeps his posture strait, and he holds my hands, until he feels me to relax. We have crazy SO, party, to go tonight. We all are crazy.

Worked in Psyhio, to tired, to blog today

Continues on from Can't Stand

I stand on my tiptoes. Usually, I stand next to Trevor.

Creatine Safety, Tolerability, & Efficacy in Huntington's Disease (CREST-E

They desperately need people.

http://clinicaltrials.gov/ct2/show/NCT00712426?term=huntington%27s+disease+creatine&rank=2

Curved Back and Neck

Yesterday, my Back and Neck, got curved, at the Grociery Store. My arms made me look, like a Monkey. This is the hardest HD symptom,to deal with. This, is one of the things, that scare me. If, there, was no Trevor, I could not live, without him. He is learning tips, about me, apply, as a Care Aide. He got info about how, to my HD symptoms. He is asking his teachers, ways to help, me. Trevor is going to see the my old Pysho Therapist , Micheal. Trevor is going to use Range of Motion exercise. You turn your, side by in your neck and back, side to side. My neck and back hurts. A lot of Special, have a curved backs. They never lower down, and these Mentally
Challenged, they take it no problem. A lot, of them, have curve , backs too. I am, look to my Friends, to live happy and deal with all things coming. I think, I look, Like a Large Ape, it is funny! Always laugh, your head of! I am doing all a lot of Reality Acceptance. I am saying, this, is real HD. I am going to get sicker, I can make myself happy again. Accepting Reality is letting yourself, saying HD is real. It is going to get worse. Accept it and get back, to happy. Don't deny, Accept.

Blueberry Juice May Boost Memory

http://www.webmd.com/alzheimers/news/20100121/blueberry-juice-may-boost-memory?ecd=wnl_lbt_012710

Hart and JHD

Me an Gary were supposed to do Creatine. That is until Hart came around. I would rather get cured, then test a supplement. The Hart med can cure cognitive, behavioral and the pyhiscal part.It is healthier than the placbol. It is in Stage lll. That means they all get the med. When I found out it moved to Canada. I was Sceaming like crazy. I fallowed this, med for 2 and half years. The it was 20 mins away, for my Dad. I told him to stop Creatine. I called My Dad. All, I told him, is that it is a cure. My Dad, contacted, the Edmonton HD Lab. They said right now, they we testing 30 years old and older. They said, that might have JHD's, in there, after the Adults. She said, that the test is short. It is a year and half. Gary and I are first on the on the list. It might be one of the few, studies we can get in.

More Updates

Updated HD information page.

Today I found out 1 boost is 1 meal. I am drinking 2 too help gain weight

US HD February Events

http://www.hdsa.org/events/index.html?month=2&year=2010

I am advocating for the young ones. With funds, we could change this.

I am advocating for the young ones. There is little Research for JHD, kids. There is little money, to help us. With your help, we will get more money, for Juvenile Huntington’s Disease. The young ones just, can’t die and pass, on, without action. I have a Juvenile Huntington’s Disease family. All of the Clinical Trials are for those 30 years old and older. With funds, we could change this. No more kids don’t have to die. For, the next two weeks, you can search and I get 0.02 cents every search. This will last two weeks. In my main page, Search there. That little boy, made this come out earlier.

Found other HD kid in my town

In my, small town. There is no other HD people. Until today. One of Nurse's Twilyla had a Son that was friends, with a kid that could be JHD. Know, they diagnosed, the poor kid. He is 11 and is badly sick. My heart bleeds, for him and his family. I told my, Nurse, to tell, him about WEAREHD.org. I want him to find, the support, he needs. I am alone here, too. Everyone thinks I have MS. They have no idea, what it is. We don't have, to be alone, anymore. This is one of the reason's I am making, the huge surprise for.

Discovery Of Compounds That Help Protect Nerve Cells

This is a huge breakthrough. A new cure possibly. I was, right, we will get cured. It is coming. It is here. Now, the generations, can stop. No one, has to die anymore.

http://www.medicalnewstoday.com/articles/176601.php

The Right Not to Know: PGD for Huntington's

http://hddrugworks.org/index.php?option=com_content&task=view&id=275&Itemid=

Learning to Treat Depression

http://www.webmd.com/learning-treat-depression/default.htm?sponsorid=cymbalta&ecd=wnl_hbn_012510&em=aV9hbV9taXNzX3dvcmxkQHlhaG9vLmNvbQ==

CARLSBAD: Marathon runners go the distance For HD

http://www.nctimes.com/news/local/carlsbad/article_233e60b5-14b9-591c-b7f9-68f9804dc13d.html

I am busy making, you all something fun, 2 weeks from now

Another One Dies of Cancer

My Grandpa Budd, who had his Wife, die of Cancer, had his Brother die of Cancer, around Christmas. Even if I can't walk, Iwill walk like there is no tomorrow. I will still do the Relay for Life. It is my duty, t help out, both causes.

Olympic Torch

The cerimony is at 1:00. It is at the rec center. Then they run with it, down from, our place.

HD Psychical Update

My new meds, have everything under control. I can use my skills easier for. When they come up. I notice, key in, I tell myself, what is wrong, with, that behavior. I have problems speaking. Sometimes, people don't understand me. It gets worse,when I am tired. I have been having uncomfortable Chorea at night. It is intense pain. Now, it is going all, over my body. Even, as I blog, my hands are so painfull. It makes me, wanna, freak out or kick. It is, one of, the worst symptoms, I had. I walk, to relieve it. I can't dress myself, anymore. I can still, bathe, by myself. Some days I am healthy. Today, healthy, I have Chorea in my hands. It makes, me do double spelling. I will, never, never stop blogging. Everyday, come here, for your daily hope. I don't want you to get into the darkness again. There is no need, to go into he darkness. Come, up, to me.

Dr. Walker Visit/ Lost Weight

I am now on Haloperidol. I pushed myself, for putting the new med in there. DR. Trew , had a vision. I am on Zyprexa. This antipsychotic Haloperidol are in the same family. I get my moods and my Irrational Episodes . I am no longer depressed any more. I got some sad news. I now weigh 113lbs. I went down to healthy,to half my size. I have been eating bites of food. Then, I have an upset tummy and can't eat more. I started taking boost, everyday, but it still did nothing. Dr Walker referred to a Deition, to help me gain weight. Home support, makes my meals. They, are, tying to help me gain weight. We have to live, with, what we got. This, is the real HD. We need to know it. To fight it. We need a reason, to fight. A reason, to never give up hope. Keep fighting with me. We have strenght together. Together, we can get strong.

TD's For The Cure. We got 14 TDS, that is $14,000 for us!

Internet down

I am back, at the Library. I am taking Thursday off, for Gymnastics's. The Library, is not open Mondays. That is, when I get, the Internet back.

Touchdown for the Cure on in an hour

We watched the Christmas day Touch down for the Cure. Every point is 1000 for the HD Society. At Christmas, they got only 12. This is a playoff game. they will be extra good, to gain NFL status. I expect lost of TD's this time around.

Added a New Poem

I added a new poem called "Keep Fighting"

Princess is better today

Added New Photos

Princess was better today

Princess was full of energy today.

Olympic Torch

The Olympic Torch is coming here next week. They are having a party here. I am just waiting, for word on when it is.

Day 2 of new Research Page

The new Research page is up and running now.

Huntington Society of Canada’s Horizon newsletter

The winter newsletter from my Canadian HD Society. There are a lot of breakthroughs coming, for the New Year.

http://www.huntingtonsociety.ca/english/uploads/Horizon_130.pdf

Pnincess has Cancer

Princess, is one of my babies. She is Trevor's parent's baby. I love her. She went and got her shots. They found out that, her Lympth Nodes were swollen. They think, she has Cancer. They took, a blood test, too see if she has Cancer. I am going to be her Care Giver. She comes first.

More Updates

I updated my research page.

Suggestions to Help Children Cope

http://www.huntingtonsociety.ca/english/uploads/Suggestions_to_Help_Children_Cope.pdf

Elixir Announces First Sirtuin Inhibitor Clinical Trial

http://www.earthtimes.org/articles/show/elixir-announces-first-sirtuin-inhibitor-clinical-trial,1110321.shtml

Amaryllis Campaign

Give yourself, another pat on the back. We helped my Canadian Society sell, all of the Amaryllis Lily's, his Christmas. This is one of the first, times, this has happened. Thanks, everyone, that helped, make HD Research happen, in my HD Society.

Meds

I love having a clear head. Sometimes, I did not have the energy to, use my WIIFIT. Since, my meds are lower. I am very lively. Lot's of energy. No brain fog. My head is clear. A lot of energy. I used to not make it to the, Gleaner's, sometimes, I just could not get out of bed. No problem, doing it now. I have been suffering, mentally, when they got changed. I got, this, change and I ended up, with severe anger and severe irrational feelings. I will always have, the anger, controlled. I am a calm, easy going person. I never get angry at all. I cue in and it leaves, me time to calm down. Be mindful, of everything. It is gives, you time to deal, with, the emotions. Mindfulness, is cuing in and recognizing, feelings. I am losing control of irrational feelings. I have a lot of episodes, since I got my meds, changed. It is harder, to catch impulsive emotions. My HD Dr. Trew, wants, to put me on a anti - psychotic, for it. We want info about, this drug, before, I take. I get allegeric, reactions, to meds. We got a appointment with Dr. Walker, to review my meds. I have to, fight anger, more now. I am also, suffering, from depression. My Dad, told me, it comes and goes. Mom, used to be, like that. I listen, to happy music. It has got me, through, everything, including, my Mom's death. My Dad, does, not want me on extra meds. My Mom, had some anti- depressants, she would, sleep, all of the time. Come, fight, with me. We need, to survive. Survive, or die. What, would you rather do? I rather fight, to the death. I will, take on and show it, that it does, not own me. Make a promise, with me. To fight, with me. We, will, ever, give in. We will never give up. Join me, Fight with me. We are all strong. Together, we are united. Together, we are strong.

Unsweetend COLA

The sad state of medicare. I think this is crap, for you, US friends. I got Obama emails from the White House. They, wanted it based, on my country Canada. We have amazing health care. Everything is free and looked after. We don't have, to pay for hospitals. the only thing, is we have, long waits, for surgeries. They started, tearing apart and lying about my country. I got that in here. I thought, it could have worked, like Stem Cells. I was told to send this, to every one I know.

http://www.snopes.com/politics/socialsecurity/cola.asp

2010 BMW Sweepstakes

1st place = BMW

2nd Place = 5000

3RD place = 2500

4rd place = 750

5th place = 500

Get tickets at :

https://www.hdsa.org/national-sweepstakes/bmwsweeps/2010-bmw-sweepstakes.html

Dance for a Cure - MA Chapter

Team Hope: is the nation's largest team-based walking program

Join and help fundraise, for HD.

http://www.hdsa.org/team-hope.html

Sold out YK HD Society Gifts

We sold out the YK presants, in short order. Everyone, give yourself a pat on the back.

Studies of phosphorylation on the amino terminus of the huntingtin protein suggest a new direction for treatment

http://www.hdsa.org/research/news/phosphorylation.html

Synaptic activity, aggregation, and memantine

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=651

Going to Emerg to get a Catheter

I got it quicky and did not need a catheter. I do have a bladder infection now.

I am giving an HD Presentation

I am going to teach, Trevor's Nursing School, he stages of disease's and HD.

The President's Plan

The White House's Health Care plan

http://www.whitehouse.gov/issues/health-care

New Year's Address

This was the year of great discoveries. Great hope. Every year, it just gets better. One year, after year, gets us closer, to a cure. We can get there. We can get the generations to stop. Every year, we get closer, to that reality. Dreams will come true. They are reachable.Celebrate, with hopeful ears.

Christmas Fun

Two of my cousin's were layed off this Christmas, like us, last year. My one cousin Bradley, told me some neat SO, things for us to do. We just need, the funding. My cousin Brian is marrying his sweet Fiance. They, have two babies. When I go home, there are 11, babies. I get vacuously babies. Trevor and I take, them sledding, every Christmas. The roads, were so bad, that we divided, our route and got a hotel. My Dad, go me more WIIFIT, workouts. They are fun. This year, my Dad's oil company, Enanca. They closed out the Central Alberta and took it to Texas, where there is lots of oil. All, of my Dad's workers, were in limbo. They worked, together for 25 years. They all had to quit. My Dad, went too School, in Calgary. He learned how too build Oil and gas plants. He started, this Christmas, the new company. Scotto, did not have, to work, this year. He came down to visit. SO, is starting up and Trevor is going to school, on the 4th. I had a fum time, with my Dad. I am going back, to Uncle Keith's, so I can ride some horses.