Enoying New Years tonight

I will not be able to blog tonight. I am going to Trevors's Aunt's place tonight. I will blog about my Christmas tomorrow.

Meds

We saw my HD Psychologist, Dr Trew. My Dad thought I was over medicated. It turns out it was true. Dr Trew took my Zyparexa down from 10, to 7.5. He told me, that is causing the twitching and clear up my thinking. The side effects, would be anger and irrational thinking. I have been on this new concoction and loving it. I have a healthy, clear mind and no twitching. I have no side effects. My mind, feels, like it did, when I was healthy.

Happy New Year's

My Mother in Laws Christmas Tree

Queston's on my blog

Everyone asks me queston's, for me to answer. If you want me to reply, leave your email. I will reply, right away.

I saved someone from choking to death

I saved someone from choking to death. We were at Trevor's Christmas Party. We were at the bowling alley. I came there, to kick Trevor's butt. A woman, started choking on chips. Trevor's Boss's wife started freaking out, everyone was. They were asking, if anyone knew the Heimlich. They were trying to call 911. That is when I made my appearance. I checked out the scene. She was over weight. I could not do the Heimlich, without hurting her. She was eating big chips. She was turning blue. I pulled, her arms, over her head. Within seconds, her air pipe was clear. I kept asking her, do you feel better. She kept saying yes. I took first aide 5 years ago. My Dad, was town hero. I always wondered, if I could do the same. It takes you, over and you completely know what to do. I just knew. what to do.

Leaving for Christmas

I am leaving on the 21th and coming back on the 31th. Tonight is the Dugdale Christmas. Have a Merry Christmas. Enjoy each other. We are having Terry and Alice over. This is my last, blog until the 31th. Merry Christmas. Celebrate.

More Updates

I updated my story. It is a sad time. I am to sick to Nurse now. It hurts when I walk, I have alot of Chorea, and very twitchy.I am just, glad that I could help, as many, as I did. I can live vicariously through Trevor. Don't let HD, get down. Don't feed it. Accpet it. This is real HD. We get sicker, but it will never take us down.

Merry Christmas

Lately, I have been, more angry. When I get angry, I key in and calm myself down. I was taught, to remove myself, from the situation. I have got good practise, with my DBT, skills, that it just keys in. I use mindfulness, to key in. That is finding, the feeling in your heart. You identify, the mood change, and deal with, it accordingly. It also, gives us the minute, to deal, with the symptoms. Me, I concentrate on my anger, and hold it down. If you catch it earlier, you have to battle, understanding of, what it is. Make a list that, has your triggers, then your reactions and finally what you will change. If you start out, you would, want you, to remove from,, the situation. As, time flies, by, you can just notice and learn how to key down. out you anger and irrational thinking. I am going to see my HD Psych and asking him meds, to stop, this. I got these skills, I still need something to take away the anger and the irrational thinking. My Dad, is afraid of me, like Gary. He was crazy, because, he did not have proper meds. I am going to Calgary, on the 21, to see my Dr. Trew. I am lucky to have both families for my support. Trevor's family, has really, accepted, me and my HD. You need support. Know one can handle, this alone. This, is time, were we get together. Love your family. Let the Christmas Spirit to take over. Trevor's last day of work on Friday. His school is funded and they will give us 2000 dollars . We also have work, with Trevor's Dad. Tomorrow, we are making a dinner here, for Christmas. I get to make the dessert. We are exited, we thought, we would had to get food, from the food bank for when Trevor, in school. This is our Christmas miracle.

Researchers Say More Cancers Are Being Detected Early or Prevented Through Screening

This is for my Cancer family. Not only does my family have HD, we have Cancer too. We have lost two to Cancer and HD. Since, I am in a small community, that Cancer has got too. I know lots of survivor's. My favourite Nurse, Shirley, got me involved for Relay For life. Soon as my little cousin was 3, when he got Cancer. Me and Trevor saw him, he was in Remission, it looked like he could, do anything. His leukaemia, struck back. he died at age 7. People, just gave up, hope and the Relay. Shirley, to me, there was thousands of people. They have lost hope. My Grandma, lost his wife, to cancer too. He also has to deal, with My Mom and my Aunt, that has HD. Now he has Grand kid's, that have it. All of the Cancer work is keeping, Evey own, like down like us. Everyone, I knew, thought they had the cure and were holding it. I so not believe. That is why I am being, my Brother's advocate with my Dad. I watch, for new Research and send it to my Dad, he makes the I will always feel like I need to save my Brother.Shirley has her group, the Lions money for HD people. Here, she said,that we are getting, the donations right to theSociety and not to advertising.

http://www.webmd.com/cancer/news/20091207/cancer-death-rate-continues-to-fall?ecd=wnl_lbt_121609

Slideshow: 15 Immune Boosting Foods

http://www.webmd.com/cold-and-flu/slideshow-immune-foods?ecd=wnl_lbt_121609

Joining the HART study sometime, next year.

We could not a study, this time around. They said that the next round will be for the Juveniles. They want to get the kinks out and after that, they will test, the younger ones.

HART - ACR16, a dopamine stabilizer

A part of the study. If me and Gary can't get in, this time. We have 16 weeks, until they take the young ones. We want to keep. We need our cure. Join up. Do something that will help you ad other's in the Field.

http://www.hdsa.org/research/clinical-trials/ongoing-clinical-trials/acr16.html

Join the HART ACR16 trial, with Me and Gary

We want this amazing drug. It is amazing. Everyone, that sent me stories, about them and this drug, are postive. This is 0ur cure. Fight for it to be here.

http://www.hdsasandiego.org/aev-54.aspx

Entering HART STUDY

Since, the HART trial, is seeking desperately 60 people, to start the trial. My Dad and me are hopeful, that they will use younger people, like me and Gary. Even of we don't gt in. They have our names, when they, test younger ones. They will call, my Dad when that happens.

Excited for Chistmas/ Meds

We were lucky. We got spoiled at the Gleaner's and Church. Church, had vegetarian protein there. They had veggie and meat. We we both happy. If I, knew how supportive Trevor is, I would have turned veggie years ago. Trevor really likes his meat. I just got to a point, where I could not eat Innocent animals, any more. Trevor, gave me two types of protein, so I do not get sick. Trevor's last day of work and his Christmas Party, are going to be on the18th. We are going to bowling and order Chinese food. I am going to work Trevor. My meds are working, they are leaving me fatigued. I have been fighting irrational feelings and anger. We also go see my HD Docters, when I go home. We are leaving on the 21th , we get to see my HD Psychologist, Dr. Trew. Even tough, I got it in control, my Dad is worried. I know there are meds that calm us down. My brother Gary is on some. I would, hate to snap on someone. That is my Dad's fear. He had to deal, with my Mom, Gary and Me. These changes are part of HD. This what, we have to deal with, on a day to day basis. We are made of Teflon. No one can get to us. Just close, down the negative and fill it with perfect happiness. Hope, if the one word that, can make or break us. Never let yours eyes, look down. Don't hide away, in you head. Take control back. Don't let HD, take you heart out.

Desperately seeking 60 good people

We need 60 people, to join the HART Trial. Me and Gary, were too young to join, and will do a another study. This, as close, to a cure as it gets. It is a breakthrough. Don't miss, the opportunity.

http://clinicaltrials.gov/ct2/show/NCT00724048?term=canada+hart&rank=1

Track-HD reports baseline findings

Me and Gary are part of the study. We go see our Nero and track our results.

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=653

Cogane

This is a new treatment, that will be, in the Clinical Trials soon.

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=654

Mesenchymal stem cells repair neurotoxin damage in an animal model

More from DR. Jan. Huge breakthrough, to fight HD, with HD. Me ad Gary can't wait for, stem cells, for ourselves.

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=655

An interview with Dr. Jan Nolta

Join Stem Cells clinical trials. This mine and Gary's cure. Join, this amazing study. Stem cells are the strongest hope.

http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=657

Volunteer Registration

They need volunteers at the Carlsbad Marathon.

http://www.doitsports.com/volunteer2/info.tcl?job_id=40815453

Non-profit Fundraiser Bundles - Footworks, Hannah Montana and High School Musical.

Get Christmas Bundles

http://www.huntingtonsociety.ca/english/content/?page=188

Meet the 2010 Race Across America riders

The brave warriors, that race for or cause. Good luck.

http://www.hdsasandiego.org/aev-48.aspx

Cedars-Sinai Regenerative Medicine Institute To Supply Stem Cells To Scientists Developing Treatments For Huntington's Disease

Gary and my cure. Stem cells are the way of the future, to cure HD.

http://www.medicalnewstoday.com/articles/173257.php

State-by-State Help for Family Caregivers

This the first and only State by State Caregiver research.

http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=368

Lot's of Christmas Parties

We have lots of Christmas Parties this year. Last year, we just had the Gleaner's. This year, we have thee Gleaner's Christmas on the 11th. Then we have Church Christmas Dinner on the 13 th. Then, we to Trevor's job, Pine Profiles final party. That happens on the 18th. That is Trevor' last day at Pine. Trevor's unemployment insurance (EI), in Canada will kick in. He will have that, it is 60 percent of your earnings. He will work, night's at his Dad's, to earn extra money. He starts school, on Jan 4th. I am hoping, everyone has a great holiday. I love Christmas. Who does not love the holidays? Enjoy, the time with your family. The holidays are here, enjoy it.

Green Tea Chemical Combined With Another May Hold Promise for Treatment of Brain Disorders

Another cure! It is here and now. The cures are real and here. Never lose sight, of the bit picture. All for the generations will stop.

http://www.sciencedaily.com/releases/2009/12/091203091856.htm

Slide show: Balance exercises

Exercise to help you gain back your balance.

http://www.mayoclinic.com/health/balance-exercises/SM00049/?utm_source=Other&utm_medium=email&utm_campaign=HouseCall&pubDate=December 7, 2009

Alzheimer's and the holidays: Find real joy by simplifying

Simplify Christmas Traditions.

http://www.mayoclinic.com/health/alzheimers-blog/MY01085

2 New Photos

Put up two Christmas pics .

First Steps for New Caregivers

How to handle being a new caregiver.

http://caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2234#article4

Find A Cure Panel for Caregiver Research

Everysurvey, you do, 25 dollars are donated to Caregiver Research

http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1001

Family Christmas Picture

Start of Christmas and Therapeutic Horse Riding

My Dad is going to have me joining the Therapeutic Horse Riding Society. My care giver told me about it. I love horses. My Uncle had a horse farm. We rode horses together. It starts in April. They would work on my balance and get out some issues and ride horses. Friday, we went to the Santa Claus Parade. Alice, Trevor and I went. It was weird, there was no Santa or Missus Claus in the parade. They had a bonfire and free hot dogs and hot chocolate. I hung out with my best Special Friend Naomi, and watched the parade with her and her Mom. After, Alice took us on a Christmas drive, to see the Christmas lights. It is one of our favourite activities, around Christmas. Saturday, we set up our tree and decorated our house. Sunday, we took family Christmas pictures. I am hoping everyone has a happy holiday and enjoy the time , with your family. We are going to Dad's again this year. We will go there every year now.

Amaryllis Campaign

My family buys these Amayllis every year. Support and by these flowers.

http://www.hdsa.org/shop/94/241/holiday-store.html

Med mix up

For the past three days, I took my morning meds at night. at night time, I just don't know what I am taking. Trevor is going to get our reminder phone, to remind him to give me, my night meds. I did not sleep for three days I feel like crap today. I feel like my body is in mental anguish. I listen to happy music, to dull the pain. Plus, Alice, Trevor and I are going to the Santa Claus parade. My Special friends, will be in it. I was supposed to be an ELF helping, Santa give out toys this year. We got little donations this year, not enough, for these little kids. It s a tradition, I feel bad that we have nothing to give. Someone wanted to know how New Moon was, it was a great movie. Trevor thought it was better made then Twight. I have HD. We have have it. That is what we are. We can make or break our lives. We can chose, to be happy or sad. I want to be happy, so should you. We all are united. We Can build lives for ourselves. We can fight for hope. All, there is hope, for a better life. Hope for a future, without HD. Hope for the miracle cures.

Managing Medications from a Caregiver's Perspective

This us ways to tell if our meds are working.

http://www.hdac.org/features/article.php?p_articleNumber=649&PHPSESSID=02c100a8e4243f0dbf0d302c93aa8f88

I almost burnt down the house today/ DBT therapy

I almost burnt down the house today. I was cooking a grilled cheese sandwich. I left the burner on. I had the frying pan on there. It burnt right through. I am lucky that I did not light the kitchen, on fire. I will never use the stove again. We went to have a meeting with Julie Gyles, the head Nurse of home care. She did some nero tests, to see how I am doing. In the past year, there has been a slow progression. I am spilling all over the place, have chorea all over, no strenght, no coordination, few falls, hard time with my memory, and keeping food down. I also have been irrational and angry, the past week. I use mindfulness, so I don't freak out. When you upset, it is keying in together, that you are upset. Just notice and take time to calm down. If you are really angry, do a list in your head, pros and cons. I have learnt DBT therapy. Makes you have the power. These will, give you the life that you need. You can have a better life, you just have to fight HD, with me. Accepting HD, is another skill. I accept my reality. I have HD, nothing will do any good to worry about. Don't let HD get you down. Fight it.

http://www.dbtselfhelp.com/

Coping with stress — What role models teach us

My Dad is my most role model- He did everything he could for Mom, including trying, to build that HD group home. My Uncle Frank, god bless him, He just could not stay with Aunt Tracy. It is hard to stay with someone, who has it. My Dad tried his hardest to sty with Mom. My Dad, is now looking after Gary. My Dad is the ultimate care giver. He will never stop supporting us. Every time, get sad or upset, I always call him. He leaves his work, phone always for me.

My role models were, Princess Diana- she was just so kind and giving, my Mom and I loved her

My Grandma Noble- She raised me- they gave up some wetlands, for fish and wildlife. She was the sweetest woman. She gave me my strong values, that I never broke.

My Aunt Karen- She Foster's Fetal Alcohol Syndrome. She fought and won their custody, when they were going home, to a unfit parents. Last Christmas, she got to cute FAS baby's, that nobody wanted.

http://www.mayoclinic.com/health/coping-with-stress/MY01071

Being grateful: Giving thanks helps with depression

Give Thanks for everything good in your life. Instead of looking down.

http://www.mayoclinic.com/health/being-grateful/MY01067

Forgiveness: Letting go of grudges and bitterness

Before, I had HD, I held a lot of hate. Half of my family, did not think, we should of kept Mom alive. My mom, never wanted to give up. She was strong. My Dad, did not want to let her go. Soon as I got HD, myself, I let it all go. there is no room for hate, expesepily if you have so little time in the world. Let it all go.

http://www.mayoclinic.com/health/forgiveness/MH00131

Rock For Hope Concert and Jambalaya Dinner

3rd Annual Curtains Up for a Cure Concert to Feature Kimball, Murney, Von Essen, Champlin and More

Can't blog tonight

I am going to see New Moon and have dinner with Trevor. I can't blog tonight.

Easing Knee Pain: 10 Reasons to Start Walking

10 good reasons, why you should walk. It is a healthy and simple way, to get healthy.

http://www.healthline.com/synvisccontent/easing-knee-pain-10-reasons-to-start-walking?micrositeId=3&utm_medium=email&utm_source=1109_02spnl

Ray of Sun Shine

My Trevor is my ray of sunshine. He is my back bone. I would never be happy without him. He supports me, even when I go veggie. When I have a bad HD day, he is always there. Us sick people, just can't do it alone. It takes a lot of support. He takes an unjugdemental and understanding unit. They have to understand, that we are more than a disease. My Trevor, will always see the real me, same with my family. We can't be alone, that is why there are HD support groups. That is why I help out WEAREHD.org. I help people on there. Never be alone. Talk Don't let it build inside.