Dear Friend,
The Huntington Society of Canada has heard from people within Canada that there is a lack of programming and support to children who are in families living with HD.
We have already spoken to an expert in the field of supporting children who are in families living with chronic disease, and now we want your perspective.
Below you will find links to two short surveys (approximately 5 minutes in length).
· HD Adults – for those who are over 18, and have been a child in a family living with HD (gene positive, gene negative or at risk) (link below)
· HD Families – for parents who are currently raising children in a family living with HD (gene positive, gene negative or at risk, living with HD, spouse/partner, and others) (link below)
We recognize that some people may feel it is appropriate to answer both surveys as they are both a parent and an adult who has experience in being in a family living with HD and you are welcome to complete both. We will be continuing to accept responses until December 4, 2009.
Thank you for your participation!
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