Huntington's Disease Education DAY

Huntington's Disease Education DAYCo-Organized by the HDSA Upstate NY Chapter,

The Albany Medical College and The University of Rochester

Saturday, May 16, 20099:00 AM - 4:00 PM

The Century House

The Century House Hotel & Restaurant

997 New Loudon Road (Rt. 9)Latham, NY 12110

toll-free: (888) 674-6873

www.thecenturyhouse .com

Registration Fees: Before 05/07/09 $10/person,

After 05/07/09 $15/person.

Includes morning coffee & lunch. Walk-ins are welcome.

If you have questions or would like toinquire about scholarships, please call (585)341-7400

or email Amy at mailto:amy.chesire@%20ctcc.rochester.%20edu

The goal of this program is to reach out to those interested in learning more about HD.People with HD, caregivers, those at risk and health care professionals are invited to attend.

Schedule:9:00 - 9:15

Registration9:15 - 9:30

Welcome HDSA 9:30 - 10:15

Behavioral Features of HD Karen Anderson,

MDDept of Psychiatry and NeurologyUniversity of Maryland

10:15 - 10:45 A Personal Tale Katie MoserOvation Pharmaceuticals

10:45 - 11:15 STRETCH & BREAK

11:15 - 12:00 Reslience in HD David Rintell, EdDPartners Multiple Sclerosis CenterBrigham and Women's Hospital 12:00 - 12:30

Questions & Answers Faculty12:30 - 1:15

LUNCH1:15 - 2:00

New York in the History of HD Alice Wexler, PhD

Center for Women's StudiesUniversity of California, Los Angeles 2:00 - 2:45

BREAK OUT SESSIONS

A: Talking With Kids About HD - Bonnie Hennig, MSW, LCSW

Huntington' s Disease ProgramUniversity of Connecticut Health Center

B: Residential Care for HD - Sarah MillerLaurel Lake Center for Health and Rehab

2:45 - 3:30 BREAK OUT SESSIONS

C: Rehabilitation Therapies for HD - JoMarie Ethier, OTRStacy Vanderhorst, CCC-SLPAlbany Medical CollegeD:
Clinical Trials Update - B. Kelly Changizi, MDMovement Disorders CenterAlbany Medical College3:30 - 4:00 CLOSING COMMENTS/FUTURE DIRECTIONS