Charity Spotlight will be promoting a new charity regularly, by providing information about its mission, the disease that it represents and various resources affiliated with the disease and the organization. We will also be building a charity database that will provide our visitors with access and information. Prior to the launch of The Project - The Children's Rare Disease Network, we will be compiling information on as many rare disease charities as possible, this effort will be ongoing. We are currently asking charities to provide The Network with specific information about their organization to be included in our network. Please click here for more information and to download our document to submit for inclusion on The Network site or to forward the information to a rare disease charity you know.
Monday, October 5, 2009
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