The Huntington Society of Canada is working with the Ontario Cancer Biomarker Network and Dr. Mark Guttman to conduct research on the development of a Functional Rating Scale for individuals with Pre-Huntington Disease. This research will help with assisting physicians to diagnosis and treat HD EARLIER than ever before, as well aid in documenting the efficiency of drugs in clinical trials. The FuRST-pHD project will be conducting separate focus groups for individuals living in the Toronto, Ontario area who are pre-Huntington disease, early Huntington Disease and caregivers. The purpose of these groups will be to openly discuss which signs and symptoms of HD are worrisome, bothersome or interfere with daily activities. The focus groups are planned for early spring. If you are interested in participating in these groups
please contact Jo Anne Watton at 1-800-998-7398, ext 32.
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