Genetic Discrimination
On June 10th, a study was released from researchers at the University of British Columbia which looked at Canadians at risk of developing Huntington's disease, and instances of genetic discrimination
On June 10th, a study was released from researchers at the University of British Columbia which looked at Canadians at risk of developing Huntington's disease, and instances of genetic discrimination
In total, 40 per cent of the respondents reported having experienced unfair treatment because of their risk of developing Huntington's disease, even though none had symptoms. A family history of the disease, rather than the genetic test result, was the predominant reason they gave for discrimination.
The results are published in the British Medical Journal. Click here to read the full study .
For more information on the study please visit
This study has generated much media interest, and is helping bring awareness not only to the issue of genetic discrimination, but also to Huntington disease. The issue was covered by The Globe & Mail. CTV News, Canada AM, the Toronto Star, etc. To follow media coverage of the study please visit the HSC website
HSC sent out a call to action encouraging as many of our friends across Canada to write to the Editor of the Globe and Mail, the Editor of the Toronto Star and to CTV to express their concerns and experiences (if possible) with genetic discrimination. You listened and took the time to write in. Your opinions help further our cause and make it easier for coverage of this issue in the future, as the media knows there is an interest.
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