Canadian Research News

RESEARCH NEWS

Dr. Hayden Receives Order of British Columbia
Dr. Michael Hayden, Director of the Centre for Molecular Medicine and Therapeutics in Vancouver, BC will be receiving an appointment to the Order of British Columbia in 2009. He is one of 13 British Columbians who have contributed to the province in extraordinary ways. The Order of British Columbia is this province’s highest recognition of their excellence, their achievement, and their citizenship,

We congratulate Dr. Hayden on this latest achievement and honour.

To read the press release please visit
http://www.protocol.gov.bc.ca/protocol/news/nr_OBC_2009_recipients.pdf

SERVICES

New Staff

Southern Alberta

Please welcome Karl Lottes, M.A., R.S.W. as the new Resource Centre Director for Southern Alberta, who started on July 27, 2009. Karl comes to the HSC as an experienced, mature clinician who is well acquainted with the resources in Calgary. He has spent more than 30 years working with individuals, couples and families who have been dealing with multiple losses. As an experienced social worker, Karl is well acquainted with the community resources of Calgary and the surrounding areas.

Karl is available 20 hours/week to provide support and services to individuals and families affected by Huntington disease throughout Southern Alberta. This may be through counseling, guidance, support and/or education to family members and professionals involved with the care of those affected by Huntington disease. In addition, he will assist with service development through advocacy and networking.

Karl can be reached at klottes@huntingtonsociety.ca or 403-230-6966

Thunder Bay

Please welcome Heather Minthorn, H.B.S.W. as the new Individual and Family Services Worker for Thunder Bay. Heather completed her Honours Bachelor of Social Work degree at Lakehead University.

Heather is experienced with comprehensive Social Work assessments, supportive counselling, assisting with Long Term Care, and family mediation.

As of April, 2009 she has been in Tanzania where she completed a 4 month internship working with the Maasai for my Masters of Social Work degree. Her work involved "Communication For Social Change" which is bringing together community members to discuss pressing issues such as HIV/AIDS. She is currently completing her masters thesis on this topic.


Ontario HD Camp
Due to a mild respiratory illness affecting staff at the CNIB Lake Joseph Centre in Muskoka, this year’s annual Ontario HD camp was cancelled. All activities at the camp were cancelled until the end of August. HSC looks forward to next year’s camp and thanks all staff and volunteers for their hard work in planning this year’s camp.




Stephen Hurst: Stephen is businessman from PEI. He is a current member of the HSC Board and has served as Regional Representative for Atlantic Canada.
Christian Lejeune is a Financial Analyst, who is President of the Huntington Society of Quebec. His name is being put forward to represent HSQ.
Amaryllis 2009Now that spring has finally arrived, it’s time to celebrate by thinking about our signature Amaryllis plants coming into bloom. This annual fundraiser raises over $100,000 each year and provides much needed funding. With your support – and the dedication of other Amaryllis volunteers like you –our Amaryllis fundraiser raises critical funds for research, services, and education in the fight against Huntington disease.Place An OrderThe online order form is both secure and efficient, making it easy to place order for yourself, family and friends. Just visit the HSC website www.huntingtonsociety.ca. to place an online order, or send an e-mail to amaryllis@huntingtonsociety.ca or phone 1-800-998-7398. For those who have additional questions about the Amaryllis contest, feel free to contact us by phone or e-mail.
World CongressCan’t make the World Congress? We’ll bring you the highlights in the October issue of ITK and full coverage in the Winter Edition of Horizon.





VOLUNTEER DEVELOPMENT

Event Section of HSC Website Are organizing events for the Huntington Society of Canada? Educational Social and fund raising events can be posted on the Events section of the HSC website

As soon as you have your event confirmed

Send the information to Devin

Bonner dbonner@huntingtonsociety.ca with the text you want to put on the events page.

Online pledging – We also have fantastic new system for on line pledging. Contact us early so we can get you set up for online pledging and make it as easy as we can on anyone wishing to sponsor your event participants.

After your event To celebrate and recognize your volunteers and sponsors send your pictures and a short write up about your event. Remember that you need permission for any faces that are recognizable in you pictures

Staying ConnectedInterested in finding out about the latest research news from around the world, or what is happening in your local HD community or for caring for a person with HD? Please visit our website and fill out our confidential contact information form to receive email communications from HSC. According to your preferences, we’ll communicate with you in confidence by email about research findings, clinical trials, best practices of care, local and national events and happenings, volunteer opportunities, etc.

Pass on the message to your family, friends and other chapter members to visit our website and fill out the contact form. Click here to fill out the contact form