Let's make it 50! When HDSA Advocates Act, Congress Responds! Take Action!We have some exciting news! In the last two weeks, five more Congress Members have cosponsored HR 678! How? Families affected by HD wrote, called and met with their Representatives to ask for their support. As a result, we’ve seen our cosponsors grow from 25 to 31 (a 25% increase)! And the more cosponsors we have, the greater our chances of making HR 678 law.Maria O’Connor of Indiana helped secure the support of Congressman Brad Ellsworth. Joined by Eric Waycott and HDSA social worker Leo Rafail, the group met with Rep. Ellsworth and shared their personal stories about HD. Before the meeting even ended, Rep. Ellsworth agreed to become cosponsor #30!“It started with an email ,” Maria said. “A few weeks later, we met with the Congressman in his local office. It was so easy” she said. “We didn’t even need to convince him to become a cosponsor of HR 678. He just said, ‘it’s the right thing to do.’
”You can do the same! Click here or visit
to email your representative today and help educate DC about HD! It’s fast, easy and can help us reach our goal of 50 cosponsors by the end of 2009. We’re also happy to help you set up a meeting like Maria, Leo and Eric. Just email us at
t get more involved. Thanks for your support!The HDSA Advocacy teamc advocacy
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