Tuesday, December 9, 2008

Another Study

New Research Project-The Huntington Society of Canada is working with the Ontario Cancer Biomarker Network and Dr. Mark Guttman to conduct research on the development of a Functional Rating Scale for Individuals with Pre-Huntington Disease. This will research will help with assisting physicians to diagnosis and treat HD EARLIER than ever before, as well aid in targeting clinical trials. Early in 2009, we will be conducting separate focus groups for individuals living in the Toronto area who are pre-Huntington disease, early Huntington Disease and caregivers. The purpose of these groups will be to openly discuss which signs and symptoms of HD are worrisome, bothersome or interfere with daily activities. Dates for these groups will be announced early in January 2009. If you are interested in participating in these groups please contact Jo Anne Watton at 1-800-998-7398, ext 32.

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