Sunday, February 8, 2009

Siegfried & Roy

You never know what tidbits you'll find reading HD headline stories. This morning I read about Siegfried & Roy will be doing a Vegas performance March 6th to benefit brain diseases. Curious, I clicked on the link and the brief article mentioned "Portions of the proceeds from their one and only comeback performance will benefit the Lou Ruvo Brain Institute. The institute is a study and treatment center for neurological diseases like Alzheimer's disease, Parkinson's disease, and Huntington's disease." That led me to find out this wonderful facility is planned to open in Las Vegas sometime this year that will help families with neurodegenerative diseases!!The LRBI has partnered with the Hereditary Disease Foundation. Located next to the World Market Center one newspaper article I read said the Institute will provide one-stop shopping: there would be a person, the contact person, friend of the family, that going to provide them with the kind of supporting, loving services they need. Some of those service could include financial and legal guidance for families dealing with these diseases as well as help with social services. Top neurologists from around the world will treat patients with thing like Alzheimer's, Parkinson's, Huntington's, and ALS. But they will also have an eye on the future. "We have no cures for these ailments and the goal of the Lou Ruvo Brain Institute is to pull some of the top researchers in the world around these diseases in order to cure and ultimately prevent them altogether," Institute president and CEO Dr. Zaven Khachaturian explains.So keep this facility in mind for any HD families living in Nevada and also research news! The one fault I found on their website.......under Resources they don't have a link to the HDF or any HD information.....yet!!Lou Ruvo Brain Institute
Keep Memory Alive Foundation

http://www.keepmemoryalive.org/
888 W. Bonneville Ave.Las Vegas,
NV 89106Phone: 702-263-9797/
Fax: 702-260-9797
Toll free phone: 1-888-268-9797
Scientific Advisory Board

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