2009 Beach Volleyball Tournament to raise funds and awareness about Huntington's
Disease...this years focus is Juvenile Huntingtons... June 02, 2009
Our 5th annual Beach Volleyball tournament to find a cure for HD is on July 4, 2008 in Barry's Bay Ontario, Canada on Lake Shore Drive at the public beach.
This year, our focus will be Juvenile Huntingtons Disease. It has recently affected our family...my cousin (who's father passed away with huntingotn's) has four sons and her 8 year old son recently had a grand mal siezure, and regular testing was done to find out what caused it...unfortunately nothing was found or diagnosed. So now my cousin and her family are anxiously awaiting this dreaded appointment for their child to be tested for JHD.
I can only imagine what it would be like to have to go through something as horrible and unfair as this. It's the worst kind of nightmare..it tears me up inside...and i don't know what else to do but try to make more people aware of this terrible disease...so that maybe they can contribute and help us find a cure...
PLEASE HELP!!
TOURNAMENT DETAILS
Like last year, there will be 2 courts, with 2 divisions a bbq, baked goods, refreshments, raffle draws for great prizes that have been donated by the community. The teams are co-ed ages 15+ with a minimum of 4 players to a maximum of 6 player on the court at a time. It starts at 8am -6pm rain or shine. Team admission is $200 per team...all proceeds are donated to the Huntington Society of Canada. There will information about Juvenile Huntington's Disease. All are welcome to attend and either participate or just support this event and our cause.
email for info: marilyn_mask@hotmail.com
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