Friday, November 28, 2008

Live

Yesterday I had a bad HD day. I went out to dinner with Trevor’s parents. I had a hard time eating. I felt like I was embarrassing them. That is how I feel when I eat in public. They don’t mind though. They went with us to the condo meeting. I was so confused. I could hardly remember anything. I could hardly think I was so confused. We have to accept the fact that with HD we are getting sicker. We can’t judge ourselves. It is not good to sit there in fear and not go out. Go outside. Don’t hide. Live your life. Love your life. Accept HD. This is the only life we get. We have to live it. We have to do the most we can. Don’t let HD take the fun away. Fight for your right to be happy. Fight for your right to live. We are the ones that can change our lives. We are the ones that can make our lives. Change your perspective. Change your life for the best. Live for the best. Don’t hide away in the darkness. Come out into the light. This is where you belong. Come out and live. Fight to get your life back. Fight to get the fun back.

Thursday, November 27, 2008

Buying Condos

They are turning our apartments into condos. Me and Trevor might buy one. He will get a second job to be able to afford it. We are excited. Trevor and his Dad can do the renos themselves. They are adding tons of new and exciting things here. We just got back from a meeting about them. We got to meet the nice owners who let us have our Lucky, even though there was no pets in here. I am going to try and work with Trevor’s Dad and earn some extra money too. Alice showed up and watched me do Special Olympics. We learned half of our hula hoop routine. At the Gleaners I cleaned and cleaned like crazy. I am switching Neurologists. The one in Calgary has bad staff. They don’t call back. They don’t take messages. They did not call me and Gary to do the COQ10 study. They never called us. I am going to go to Kelowna. She never showed up at our conferences either. She is good but her staff is horrible. She expects us to drive 6 hours to make an appointment. Forgive yourself. Forgive others. HD is not us. We do not need to beat each other up. To beat up ourselves. It is not good. We can’t help what HD does to us or our family. It is HD. It is not us. We are ourselves underneath. We always will be there. Don’t forget us.

Wednesday, November 26, 2008

2nd Annual Curtains Up for a Cure

Come join Broadway's best and brightest as they herald in the Holidays with a caroling cabaret to help find a cure for Huntington's Disease.
When: Monday, December 15, 2008
Time: 6:30pm - 9:00pm
Where: Playwrights Horizons
416 42nd Street, New York, NYCost:
$60 Reception and Performance$30
The event features Meredith Patterson, who is currently starring on Broadway in Irving Berlin's White Christmas. Meredith's mother tested negative for the HD gene, but she continues to help us fight for a cure.
To buy tickets contact ChenellTannure (ctannure@hdsa. org)

Live Lively

I am so glad to have that little boy. Trevor gave him his first haircut. It looks better then we excepted. I have been dancing. I would sit or stand and start moving back and forth. I have no control. I think it is funny. I tell Trevor I am dancing. He asked me if it bugged me. “I said no, I love to dance.” Take everything lighthearted. My social worker told me that I would always be dancing. Learn to laugh. The twitching when I eat is still going on. My allergies are as good as done. I find my moods are better. My hives are almost gone. Very few are left. Now once again I might get a virus. There is another one that someone brought to bowling last night. Tomorrow I get to volunteer and do Rhythmic Gymnastics. Those are my days. I look so forward to going. Get a laugh out of life. Joke. If you live lively then you have a fun life. It fights HD. A laugh, a smile. They can do so much good. Just get it out. Live your life well. Live it how you want too. Just make it what you want. You got a life here. You can make it to what you want. You can make it special. You’re the one that can do that. Shape your life.

Tuesday, November 25, 2008

HD Christmas Presents

The HD Society of America is selling Christmas HD Merchandise. Give to the cause. Get come Christmas presents that mean something.

Happy Thanksgiving

Happy Thanksgiving My American Friends!
I had a good day. I bowled and got the highest score I have ever got. I was in the hundreds today. My hands are still twitchy when I eat. I have been hallucinating and getting paranoid again. I went months without any. Yesterday I saw what I thought was a red light from a gun. I thought someone was going to shoot me and Lucky. I went and hide in the bathroom until Trevor came home. It felt so real. I have been seeing all kinds of scary things again. It has been so scary. I got to sleep and get scared. Everything feels so real. This the real HD. This is our real life. This is what we are fighting. This is one that we can win. Don’t give up the fight. Never give up on yourself. You are important. Everyone has a propose. Everyone is here for a reason. We are meant to have this. In our families. We are not meant to die. We are learning the way people should. To live life and appreciate what other‘s cannot. We have real lives that have meaning now. HD makes it that. We will never take people for granted. You can’t. Life is too short. Live and accept life for what it is.

Tetrabenazine Approved

The first ever drug that can treat chorea.

HART - research sites are actively recruiting research participants

This an American Study that is starting now. This a good site to join studies.

Monday, November 24, 2008

Don's Funeral

Don’s funeral was a good tribute. It was an uplifting ceremony. They had collages of his trips. He just made it to 44 and died from a heart attack. My allergy attack is going away. My hives are disappearing. They have me on steroids. It is a bad allergic reaction. The only thing is they think I might be allergic to my Epival. It has been driving me crazy. I had one afternoon pill today. It did nothing bad. It made me feel better through. I have been really tired lately. My eyes are having a harder time seeing. Just accept the fact that we are all going to get sicker. There is hope at the end of the tunnel. There are tons of reasons to fight. To stay alive. You have to fight. Every day is a battle that only we know. It is a battle that we can win. We are the strong. We are the brave. We are stronger then we think. We are stronger then we appear. We are the HD warriors. We can use our warrior strength and take back our lives. We have the power. Just use and live. See the sun, shining so bright.

Happy Thanksgiving


Friday, November 21, 2008

HD Video

All of home support loves Lucky. He is a very passive dog. Trevor is going to try and give him a haircut. He defiantly is my little boy. He loves his Mommy. My best friend Miranda and I are going to make an HD music video. She made a song. A good song. We are going to come and get ideas for the video. We might realise the song. All of the proceeds will go to HD research. She has helped me to hold that HD art auction. She put it together. We have done all of our good humane work together. She is talented DJ who can make music. She also runs her own video company. The thing that home care figured. I can’t remember my meds. My appointments. To brush my teeth. But I never miss a step on here. Still making everything really good and by myself. They all come here. Also helping we are WEAREHD.org. I can get sense out and remember things good. It is just my self care. It is very weird. I just can’t give up. I will never give up. I can’t. You need hope. Every day you deserve to have someone cheer you up. I have the responsibility to do this. One life without hope is too much. Take my happy advice. It is real. There is hope here. There are stem cells. There are tons of breaking treatments. I won’t give up and let you not see that every day. I could not let myself. I feel tied to you. I have HD. I felt like what you were seeing how you were going to die every where you look. That is why I started this. Especially since we have the highest suicide rate out of any illness. I care about every single person’s life. One life lost is too many. They don’t have it. They don’t know it. How hard it is to see that. Everyone live. Don’t give up. Fight for right to be happy. Fight to have hope every day. I will fight to give you hope. Fight to gain it.

Added more to Why Get to Tested Page

I edited that page too. In these I have to take out little Kaiden. Since he died. I will make a cancer memorial for him too.

Added more to My Story

I changed stuff on my story.

Thursday, November 20, 2008

Added new care giving tips.

My Mom used to grind her teeth all of the time. I found ways to prevent that.

Don's Funeral

My rash is an allergic reaction. They think I might be allergic to my Epival. Soon as it was upped it that is when it happened. I am allergic to a hundred million things. It could be anything. I got allergy meds and a cream to put on it. My hives should be gone by next week. Today was the appointment so I missed the Gleaners. Still went to rhythmic gymnastics. We are getting the rope routine well now. I was doing it way better. We went out to dinner with everyone later. Don’s funeral is on Saturday at 1:00. Trevor and I are going to it. All of us Special people are going. He was a good guy. He was missed when we were eating. Today I have had an HD free day. Just hand twitches. Just trying to move on. All of us are. The dead people want us to be happy. Live our life the best we can. I like to make my Mom happy. Sometimes I do think of how I made her happy. She is always in the back of mind. Dealing with HD is how I really want to make her happy. She was so full of life and funny. She never let HD take that away from her. Even when it was so hard. She wanted an IV and anything to bring her back. As do I. Even though my extended family wanted her not put her on the IV. That was her wish. That was Dad’s call. He was not going to lose my Mom quickly. Fight for your happy life. Fight for your grander life. Fight to smile.

Reorganised Award Page

I reorganised the award page.

New clue for cellular damage in Huntington's disease

They came up with more info on how our brain works.

Stem Cell Sciences Enters into Services Agreement with Huntingdon's Disease Research Group, CHDI Foundation Inc.

There is a merge between the stem cells and HD organization, CHDI Foundation, Inc. they are going to commercialise them. This is a huge breakthrough. Countdown for the cure will end. I believe in stem cells.

Wednesday, November 19, 2008

Cheer up

I was Lucky to have Shirley this morning. She knows how to cheer a person up. I need to go to Don’s funeral. I was grieving bad today. Today I was twitching in my hand when cooking. I find that that is happening more. I also have a problem with choking. Sometimes I choke on water. The past week I have had bad sleeps. I just get to excited to sleep. I am used to periods of insomnia. Sleep gets bad and your symptoms get worse. I fell out of bed twice last night. We need that bedroom rail. Home support are worried that I could fall and crack my head. Let’s put the grief behind us. I feel that the Dead would not want us to not move on. Not live life. They are never forgotten but we can live our life. They want us to move on and be happy again. Especially if it is someone you love. Move on but don’t forget. Never let them fade. Live for them. That is what they would want. Move on and never forget. You can move on and still remember.

Added a new award page

I added a new award page.

Tuesday, November 18, 2008

Greiving

Today on my Special Olympics team members died. His name was Don. He has been sick for a while and had to go to the hospital. He was good. He was one of my teammates. We are all going to go to his funeral. This is horrible. Three deaths so far this year. I am hoping that Trevor’s father will not get a tumer. I could not lose one more.

Monday, November 17, 2008

Twitches

Trevor noticed that when I sleep, my arms getting very twitchy, HD twitchy. I also have a hard time holding my spoon. My hand gets really twitchy. The past three days I have had almost no sleep. It is making everything worse, We will soon get Trevor’s Dad’s results to see if he gets a tumor. I am so excited to go home for Christmas. As I get sicker I try and not let it get to me. You need tons of support. I feel like I got it. Trevor makes the difference in my life. I don’t know where I would be without him. We don’t take each other for granted. Don’t take anything for granted. You don’t know what will happen. Live life with the knowledge of knowing a hundred percent that you love someone. We are put in the position where we have no choice. When something happens it brings us together like nothing. We can be there. Don’t take life for granted. HD in the family gives us the knowledge that others don’t have. When I have a hard day that is what I keep thinking of. The stem cells. Countdown for the cure will be over. We all have that gift of life back. Take your life back.

Sponsor HD Great China Walk

She has put a way to sponsor her walk across the Great Wall of China. Sponsor her.

Sunday, November 16, 2008

World’s First Baby Tooth Stem Cell Bank

This is a huge breakthrough. They can get Stem Cells out of Teeth. Countdown for the cure.

Saturday, November 15, 2008

Full Fill Your Life

My eyes have a hard time focusing. I have been having a good HD days these past three days. I get a feeling that I need my body to freak out. It is weird I get pain in an area and feel like I need to freak out and kick to make it better. I went to Cranbrook on Friday. We did it. It was not planned. It was fun. At the Gleaner’s Christmas completely healthy. Not one single symptom. I had fun. Trevor came too and helped carry stuff in and out. We got toys for Lucky for Christmas there. A lot of Grandparents showed up getting stuff for their Grandkids. It was a good day. Always strive to have a good life. If you don’t live you will regret it. Live life. It is the only way that we can have fulfillment. Fulfill your life. Fulfill your dreams. Full fill your goals. You are the one that can do that. You have control. Fight and gain the control. Take your life back. Get the control. Fight to full fill your life. Fight to live your life full of joy. You fight. Get your life back. We all have the strength to do it. We have to chose to use that strength. That strength can get us through our hell and back again. We can do that.

Thursday, November 13, 2008

Countdown for the cure

I had a fun day. Volunteering and gymnastics. I am going to volunteer at the Christmas sale. It is in Saturday. I will be volunteering from 11 to3. Trevor will also be volunteering on Saturday. They are also going to have Christmas dinner. I love Thursdays. Always so much to do. I love the Gleaners. I love Special Olympics. Find something to love too. Find meaning in your life. Find something to live for. Something to dream of. A future to dream of. Whatever you want to keep you going. Live for something. Live for life. Life has to get better. Better every day. We fight. Things are stacked against us. We are the ones that can beat the odds. Just believe. Believe in miracles. Believe in cures. Believe in life. Believe in joy. Believe in beg happy. Countdown for a cure will end soon. There are many breakthroughs. Lots of hope for tommarorow. Dream for a better life.

Wednesday, November 12, 2008

Fight For Our Life

Yesterday my site went down for five hours. Something happened to my webhost. Shirley my main Nurse’s Mom and Dad both fought in world war two. I thought that was cool. She bought me some sea salt. It helps build brain cells. You just use it instead of salt. Tomorrow I get to volunteer. Then go Rythimitic Gymnastics. I get so excited. I love it. I am excited to go home for Christmas this year. I miss my family so much. We found the way we can rent that home. There is a way that the Government can pay and we can get a house. Low income housing. They will make us a house for cheap here. Something has to be done. Too many stairs here. Get out and volunteer. Make yourself useful. Get outside. Enjoy the fall. Enjoy life. Be active as long as possible. You can fight HD like that. Fight every way you can. Fight for your life. Fight for you future. You fight every day. Every day we get up, it is a new fight. We all win. We can get outside. Be active. Don’t give up. I am still doing my aerobics and yoga. I do it before I get on here. Never stop being active.

Tuesday, November 11, 2008

Remembrance Day

Today we have a day of Remembrance. The soldiers that laid their lives in the line so we can have a better life. Today has been a bad HD day. I got caught in a couple of trances. I could not get out of them. My chorea was really bad. I also was struggling with depression. There is a program here that will pay our rent on our houses and apartments. We are looking into it. This one will not be safe for long. We have four steps of stairs. Move on with your life. Always see the rainbow of hope. That sunshine beam shining and saying that our life is good. We have to appreciate our life. Love our life. Accept HD. Accept what HD does to us. We can fight to be happy. We can fight for the hope. We can fight and win. We can take our lives back. We can get our future back. We can get our dreams back. We are stronger then you think. We know we can fight. We know we can win. We can win this fight. We can win. We can live our life with joy. Joy and laughter. That is what we need. Fight for it. Our life is on the line. take our life back. Take our future back. Get our hope back.

Remembering


Monday, November 10, 2008

Forgiveness

Today my Occupational Therapist Amy came over. She took a look at me going up and down my stairs. I walk on my tiptoes and lean forward. I forget to use my grab bars on there. We are getting a bed rail put on my bed. I have been falling out of it while sleeping. We are looking into getting a low income disabled house. There are tons here. We need one. There are tons of stairs here. It is not safe. Today I am having an HD free day. I have been drinking boost every day. I just want to gain weight. All of my Doctors laugh. They say that I am the only young girl they know that wants to gain weight. Don’t let HD not let you live your life. You have to love yourself. We are not HD. We are here. We are real. We have feelings. We aren’t the disease. The disease will never be us. Forgive yourself. Forgive your family. Don’t let HD take the hope away. Live the dream. Live for your future. Live for the now. Live for the then. Just live. Appreciative every second. We feel everything. We know everything more than others. We know how important life is. We know how to live now. Just live. Just live and love your life. Your family. We never take things for granted any more. Trevor and I don’t take things for granted. Neither should any of you. We have lessons that we have learned.

More Updates

I added more to the Care Giving tips and my HD info.

Brain Exercises That Boost Memory — and May Fight Alzheimer's

These tips and mental exercises can keep your brain sharper and may even help prevent the signs of Alzheimer's disease

Sunday, November 9, 2008

More Updates

I added another animation to my HD information page.

Friday, November 7, 2008

Love Your Life

I find the extra Epival in the afternoon is making me less irrational and less angry. I had no idea it depletes in the afternoon. At least we know now. My chorea is bad. Other then that I am feeling good. I had dinner with Alice. We took our dogs out for a walk. It was fun. We are trying to repair everything. It is good. We have to be forgiving. Lucky loved the walk with his cousin Princess Abbey. I have the hardest time seeing cars. That is why I won’t walk alone anymore. My Nurses are doing a great job. I walk so fast Julie was saying that I take them out for a walk! I heard of people with HD getting ran over. I took the initiative and called Julie to set it up. They are setting me up with a reminder lifeline. It will remind me to take my meds. Also for appointments. Just in case I fall, it helps you get a hold of an ambulance if you need one. The Gleaners has a Christmas Party. They are also going to have a gift exchange. I am excited. Get excited for your life too. Live with HD. Don’t let it rule your life anymore. You rule your life. Take it over. Live again. It is your life to live. It is your life to have fun with. Have fun with your life. Show it doing the things that make you happy. Happy is the only way to live. You can get there. Just try. Laugh. Have a good time. Show HD that you own it.

Added a Matthew Shepard Erase Hate Banner

I put up this banner to make sure that no one else has to die. Erase hate from our lives.

Another Award

This was a Genie Excellence Award. It was a hard one to win. I had to pass through three judges.

Thursday, November 6, 2008

Bright Future

Today I am doing better. I had an almost HD free day. I went to volunteer today. One of my co workers and Special Olympics instructor Gerri, got me some ensure puddings. It was nice. I went and did rythimatic gymnastics. We have our routine down pack. Today someone accidently through the rope in one of the flags. I got confused and forgot what time it was. I thought it was at 5. It was at 4. I got o do it for 15 minutes. At least I did it for a bit. Nobody be afraid of HD. No one needs to fear it anymore. No more fear. No more scares. HD is temporary. There are cures here. They are here and now. Live for them. Live for the moment. Make everyday count. Live your life full of hope and peace. Get the peace inside. Get the hope inside. HD will not take any more lives. It will not take us. We fight and live. We will not let HD scare us anymore. Don’t let it get in your head. Get it out of your head. We don’t have to live in fear. You know different now. You know there is hope now. I want you to see as I see. A bright place where we are free of HD. We have lives. We have futures. We can live in harmony with everything. That can be us.

Sponser this Carlsbad Maraton Runner

On December 5, 2007 I lost my mother to a horrible disease called Huntington's disease. My mother was not only the strongest person I knew but she was also my hero! Unfortunately, because of this disease my mom wasn't able to watch me grow up and teach me the things that mom's do best! I feel robbed to have someone I needed so much in my life to be taken from me at such a young age.


As many of you know my family Misty, Deanine, Troy, Cheryl, and Melissa have ran previous marathons to raise money for HDSA to help find a cure. So, with that said I am very pround to announce that I will be running in the Carlsbad Half Marathon on january 25th, 2009 in memory of my mother and also for my Aunt and brother who were both diagnosed with Huntington's Disease.
Ihttp://www.firstgiving.com/ashleyshaw

Another Award

I won an international award. It is a very hard to win bronze Natayada Award.

Wednesday, November 5, 2008

HD Free With PGD

HD Free With PGD! Trevor and I want to do this.

Planning an HD-free family with IVF/PGD
Yes, you can stop Huntington's Disease in the future generations of your family! With the help of skilled medical professionals, YOU have the ability to prevent your children from inheriting HD.

Obama! Obama! Obama!

There will be stem cells testing now he is in power. There will be gay marriage. He will get rid of US genetic discrimination. He will get you health care. I wish we had an Obama here. The first Black man! Come to Canada and take over, please...

Added a Video Page

I put out my full two minute video Hero one I took myself. Every few months I will take more. I also want more HD pics of myself. You guys can see the HD process with me.

Remembrance Day

I am having a better HD day. I am healthier. Today we had breakfast with Trevor’s Mom. I remembered her usual dinner. I went there once. That’s how sharp I was. I lost 3 lbs in the past two months. That is why I am going to get a dietian. We are thinking that we aren’t getting benefits. We are going to talk to our MP. We need something. At least with Trevor’s job now, he gets paid a lot more. I love very vet that participated in World War 2. In Hitler’s world, everyone with a genetic illness would be killed. I am glad that they fought for our freedom. I always used to write Remembrance Day poems and read them at school. I love the freedom. I am glad this day is here. There are lots of Vets here in Creston. Shirley my Nurse’s, Dad fought there. Let’s live the life they set for us. Let’s live with the freedom. The knowledge. They fought for us. So we could be free. So we could live. Let’s show them how we live. Let’s show them that we love being free. They made sure that we could survive. Living life with HD is the only way to show them, that we appreciate the sacrifice. Live for them. They died for us, so that we can live. Show them. We know how to live We are free to live as we want. They died for that. Show them that us who are sick, are grateful. I am grateful for the life they have given me. Be grateful for yours too.

Remembering




Tuesday, November 4, 2008

Fight

I am so sick today. My eyes can’t focus. I am having Amy my Occupational therapist over, cause I am falling a lot. The meeting went good. All of my Doctors and home support were there. They upped my Epival. I was getting angry in the evening. Epival wears off in the evening. Now I will take it in the afternoon. I am being hooked up with a dietian to help me gain weight. The conference was so good. I love them. Julie the head Nurse came and gave me boost and some food. This is the worst month for food. I will stay up all night and see who wins in the election tonight. I am crazy about elections. I tell Trevor they are like my Oscars. I did bowling today. It was so fun. There are a lot of people there that amaze me. I can’t see how they do it. Don’t disable yourself. You are the one that chooses that path. Are you going to do the best? Or our you going to lose yourself to HD. You can fight HD. This activity is the best way to fight. It will keep you healthier longer. Fight it back. Fight it in keeping yourself active as long as possible.

Monday, November 3, 2008

Added a Top 50 Awards Sites Badge

Added a Top 50 Awards Sites Badge.

We are all heroes

I have the flu today. I have a fever, upset stomach, and pain. Yesterday I almost fell outside. Trevor caught me. Today has been a bit better. I had to get home support to give me a ride to one of my appointments. I had to set up the meeting. I had a hard time telling the Nurse stuff. I would forget half way too .I was too sick with the flu to walk. We can see Trevor’s Dad’s eyes blink. I hope it is not cancerous. I finally got Trevor to join WEAREHD.org. I been trying to get all of my family to join. Gary is to in denial to talk. Trevor takes everything harder then I do. We are having that care conference tomorrow. Every Dr in Calgary, My Dad and home care, our mental health workers. Also our family Doctor will come. They do these every 6 months. I am going to learn about stem cells and seeing if we can still enter these studies. They are really helpful. Don’t lose the fight. We are in the biggest fight for our life ever. Every day I fight to. We have to fight a lot. Only we know that. Every day we fight to just to smile. Every day, every second is a fight. We can win. It will all be worth it in the end. We will be cured. We will not suffer and be left to die. We will suffer and live. We are too great of people to let die. The countdown for the cure will stop counting. We can get there. We have to fight. To be strong to get there. Show courage. This is our battle. We have our lives on the line. Only we can win. The cure will come. We can all win. We just have to fight with all of heart. This was inspired by a family that in the support group, heard about how they were all going to die. There was no hope there. They don’t have HD all of these sites and blogs. They have no idea how this affects us and our families. I do. I know. That is why I started this. No matter how sick I am, I will never stop. I can’t see anyone else being scared. One life taken is one to much.

Sunday, November 2, 2008

Treatment slowed reduction of brain improved motor functioning

Is HDAC Worth Waiting For

Crarlsbad HD run

Set up a Team.

The 2008 Celebration of Hope Gala

The 2008 Celebration of Hope Gala presents Don’t Undress Until You Die The Wit & Wisdom of Al McGuirea one-man play written by Dick Enberg and starring Cotter Smith A benefit for the Huntington’s Disease Society of America Wednesday, Nov. 12, 2008 @ 5:30 pmMuseum of Contemporary Art, San Diego in La Jolla

Calfornia Stem Cells

This is a good article on stem cells in California. This is huge. This is our cure. My Dad wants us to get stem cell transplants. This our cure. this is our time.
http://www.hdsasandiego.org/dsp_article.cfm?ArticleID=391&CategoryID=6

Get a team

Get a Team or donate.

I found this just for you.
Sunday, November 02, 2008Team Hope Walk- Tucson, AZGene Reid ParkWHAT: Team Hope Walk WHEN: Sunday, November 2, 2008 WHERE: Tucson, AZ For more information please contact:http://www.walk4hd.org/

www.walk4hd.org

Saturday, November 1, 2008

Happy Halloween

I have been falling really bad lately. I have hurt myself. I have almost fell backwards down the stairs. I fell out of bed. It hurts. I have been getting bad again. I have two days of bad symptoms. The good days are gone. It is weird but we have good days and bad ones. We had a fun time dancing. I ran into one my Special Olympic coaches there. We also ran into a new friend and took her. She seems nice. I need more friends since Godmother moved away. I am visiting my sick friend. She is so sick she can no longer do Rythmitic Gymnastics. She is in the late stages of MS. Her and I were the only two that could get to sick to do it. I am losing my mind again. I have slurred speech now again. My chorea is bad. I am dancing like crazy. Don’t live your life afraid of life. Don’t shut yourself indoors and not live. You need sunshine. You need life. You need friends. This your time to shine. The sun makes us shine. The outdoors make us shine. Find things that make your glow. Find the good there. Find the good in your life instead of the bad. Live and love yourself. We are all good people. We deserve to be happy. We deserve to have a life. We deserve to have the best of life. Just live. Just be happy. Make your life the best you can.

HD Great China Walk

She is walking the Great Wall of China to raise money for us.


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