CVC Launches Program to Help Patients with Huntington's Disease
Mechanicsville, VA, November 2008 Caring Voice Coalition ("CVC") is pleased to announce a new program to assist patients diagnosed with Huntington's disease.CVC is a national non-profit organization that helps patients afflicted by certain diseases afford costs-such as copayments and premiums-related to the prescription therapies for their diseases. CVC's assistance has previously been limited to patients affected by Pulmonary Hypertension, Alpha-1 Antitrypsin Deficiency, Idiopathic Pulmonary Fibrosis, and Chronic Granulomatous Disease. The new program expands CVC's assistance to include patients with Huntington's disease, an inherited disorder that destroys brain cells involved in emotions, intellect, and movement. "As medical costs continue to soar, CVC is working diligently to help underinsured patients afford costs that would otherwise prevent them from beginning or remaining on therapy," said Pamela Harris, CVC President. "We are excited to expand our programs so that we can help patients diagnosed with Huntington's disease."============================================
Caring Voice Coalition8249 Meadowbridge RoadMechanicsville, VA 23116Tel: (804) 427-6468Toll-free: (888) 267-1440Email:
The Caring Voice Coalition, Inc.© is a national 501(c)(3) non-profit, charitable organization, established in 2003 to serve the comprehensive needs of individuals affected by serious, chronic disorders. Caring Voice Coalition serves people with the following chronic conditions: Alpha-1 Antitrypsin Deficiency (Alpha-1)Chronic Granulomatous Disease (CGD)Huntington's Disease (HD)Idiopathic Pulmonary Fibrosis (IPF)Pulmonary Arterial Hypertension (PAH) If you are affected by any of these disorders and believe you would benefit from one or more of our programs, please contact us! At the Caring Voice Coalition we understand that the diagnosis of a chronic disease often results in situations and emotions that deeply impact a person's life. Visits to the doctor, complex treatment regimens and periodic hospitalizations make daily life harder to manage. Financial burdens caused by medical appointments, insurance costs and therapy co-payments may strain already limited financial resources. And feelings of depression, fear, and anxiety may make it hard to manage day-to-day needs, to plan and to hope for the future. To a person living with a life-threatening chronic disease, these challenges are often all too real. Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients. Our current programs include: Financial Assistance Program
The Caring Voice Coalition Financial Assistance Program provides financial help to eligible patients. Caring Voice Coalition may pay a portion or all of a patient's share of cost under the patient's health insurance plan. A patient can receive financial support through one of our grants programs listed below. Insurance premium assistanceInsurance co-payment assistanceMedicare prescription drug assistance Insurance Education and Counseling:
Caring Voice Coalition established its Insurance Education and Counseling Program because we recognize that health insurance issues for chronically ill persons are often very complex and difficult to resolve. That is why we provide specialized insurance assistance and guidance to our patients. The following services are available: Identifying sources of coverage;Assisting with enrollment;Reviewing and explaining benefits;Mediating problems and complaints; andPreparing and submitting appeals. Our Reimbursement Specialists will work with you to contact the parties necessary to gather information and resolve insurance problems and disputes. This includes insurance companies, employers, government agencies, and any other entities involved in ensuring coverage for a life-sustaining medication or therapy Patient Support Program:
Our Patient Support Coordinators will identify public and private programs and services that may be of benefit to you. Our goal is to connect patients and their loved ones with services that will make life a little easier-emotionally, socially, and financially. Whether you are newly diagnosed with a chronic illness or were diagnosed years ago, our coordinators are ready to help. Common areas of assistance include: Providing educational materials that explain the patient's disease and how it develops; -Referring patients to support programs and services designed for people using a particular medication or drug therapy; -Identifying peer support groups and other programs which may provide emotional support; -Completing a "Benefits Check Up" screening, which lists state and federally-funded programs under which the patient may be eligible for assistance; and -Locating community social service programs that may assist with living necessities such as shelter, clothing, food, and transportation.
See above link for all of the information needed to apply.To be eligible for assistance, an applicant must meet the following criteria: -The applicant must have one of the specific chronic diseases supported by CVC;-The applicant must be a US citizen residing in the United States or a permanent legal resident of the US;-The applicant must have health insurance with a monthly insurance premium or monthly prescription co-payment that he or she cannot afford;-The applicant must be on an expensive FDA-approved therapy related to the disease;-The applicant must not be receiving or eligible for other assistance; and-The applicant must demonstrate financial hardship.
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